Good morning everyone foggy but dry here π
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Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily. -
Good morning all...no frost this morningππ»
Time to tackle wordleπ€βInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good morning Denise, Keno, Linda, Rosemary and all from damp overcast Radcliffe xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Morning all xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Girl next door has been round to do an online application for a blue badgeIt's all funnyComment
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keno that's good of her...nice to have helpful neighboursππ»πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Enjoy the return and ensuing 'madness'ππOriginally posted by Ellie View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Afternoon everyone xx
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Thanks Linda, already I miss my peace and quiet π - not really, I wouldn't have it any other way π₯°ππOriginally posted by LindaB View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Good morning allIt's all funnyComment
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Morning everyone....welcome to Monday. Hope it's as good as it can be....keep cozyπ€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good morning π. Hospice at home visiting todayβ¦Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Morning, frosty here. My car is all icy. I don't think we will be rushing to go out.
I got our blue badge sorted in October and this week they should be painting our parking bay. I had a few problems because it confused me as Stephen no longer drives, car in my name so which name do I use to apply? A phone call sorted it all out. They were really lovely. π€πwhen i can think of something profound i will update this.Comment
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Willen hospice, my local, coming to discuss palliative end of life care in my home
Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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