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    Originally posted by Rosemary6NT View Post
    Willen hospice, my local, coming to discuss palliative end of life care in my home
    I see, thanks
    It's all funny

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      Hello all x

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        Hi everyone
        i have a parking bay. Yippee. I said my parking is hopeless can you make it bigger. He said they could but they'd have to move the parked cars. He asked what size I was thinking but I was a bit embarrassed by then and I don't want to upset the neighbour's. Perhaps I can get it extended at a later date. Need a car that can park itself. Probably a self drive one then I might not get lost. 🧚‍♀️
        when i can think of something profound i will update this.

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          G'day folks 🌞🌞 - I made it during daylight hours 👍👍😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            Parking not my forte nor driving. Never liked it. Well actually I never minded the driving it's everyone else on the road that used to bother me.

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              denise It's not only about your dubious parking skills 😉 but, more importantly, that there is adequate space for to safely transfer Stephen from the wheelchair into the passenger seat without blocking part of the road... 😘😘
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                I know. I think it will be ok. Soon see. I could always park over the lines and hope no one sits up me bum.
                I agree about other road users. They drive too fast and have no manners. I drive with respect for others. They just cant hear what I'm saying 🤭
                when i can think of something profound i will update this.

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                  Good day all xx

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                    Hello Gordan1111

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                      Good morning all
                      showed, dressed, knacked and coffee
                      frost and a beautiful sunrise. Wish I could walk under it.
                      It's all funny

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                        Morning all keno .

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                          Morning everyone. Looks like a lovely start to the day. I'm still thinking about getting up. Stephen is still snoring so I'm not going to disturb him. I'm enjoying the peace. 😉
                          when i can think of something profound i will update this.

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                            Morning all, the tea fairy has twinkled her magic. Tea with toast marmite and cream cheese this morning 😀
                            Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                              Originally posted by Hairbsb View Post
                              Morning all keno .
                              Good morning and welcome to the madhouse
                              It's all funny

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                                Morning all, waiting for Steve to wake, stuck in bed xx
                                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                                I'm staying positive and taking each day as it comes.

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