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Morning all, still in bed waiting for Steve to wake and come release me from the overnight catheter bag connected to a stand. SLT coming 11 and Council to measure up and decide if can have ceiling hoists the afternoon. Fingers crossed xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Good afternoon all ππ
My night was midway between that of LindaB and denise hoping his nibs wants an earlyish night tonight π€π€
Very meh day outside - not a ray of sunshine, not a breath of wind - so I shall have to make my own sunshine (no wind comments needed)
Have a nice rest of the day π€π€π€βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Good morning my wonderful brothers and sisters. Never underestimate the importance of Little Things. Every morning find something to get you out of your pit. A film half finished, a series you enjoy, a favourite carer visiting, expected post, favorite breakfast, the prospect of a pamper even checking the fish survived the night. The reason is unimportant but having one is vital. Stay Strong. We are here for you. πβπ±ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx
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