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    Good morning
    It's all funny

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      Why has Matthew got a donkey in his house? Has he over done the meds?
      morning everyone 😘
      when i can think of something profound i will update this.

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        Bless you Denise, I'm not talking about donkeys. πŸ€”πŸ˜πŸ€—πŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          Morning all, still in bed waiting for Steve to wake and come release me from the overnight catheter bag connected to a stand. SLT coming 11 and Council to measure up and decide if can have ceiling hoists the afternoon. Fingers crossed xx
          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

          I'm staying positive and taking each day as it comes.

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            Morning all...didn't sleep well...will be napping later😴
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              I slept well. For a change. Ok please explain donkey ? πŸ€”
              when i can think of something profound i will update this.

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                What do you get if you cross a dinosour with an upset tummy?

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                  denise if you don't know I can't tell you. πŸ˜βœŒοΈπŸ€—πŸ˜xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    Oh I'm not getting the donkey or the dinosaur with the runs. Wordle defeats me. HELP! Should have stayed in bed.
                    😳
                    when i can think of something profound i will update this.

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                      A megasourous . Heard it from Brian Conley many years ago

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                        πŸ˜‚πŸ€£πŸ€­
                        when i can think of something profound i will update this.

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                          Good afternoon all 😘😘

                          My night was midway between that of LindaB and denise hoping his nibs wants an earlyish night tonight 🀞🀞

                          Very meh day outside - not a ray of sunshine, not a breath of wind - so I shall have to make my own sunshine (no wind comments needed)

                          Have a nice rest of the day πŸ€—πŸ€—πŸ€—
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            After my Meh weather earlier today, I'm looking at a stunning flame orange sunset sky - thank you Mother Nature πŸ‘πŸ‘πŸ‘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              Good morning my wonderful brothers and sisters. Never underestimate the importance of Little Things. Every morning find something to get you out of your pit. A film half finished, a series you enjoy, a favourite carer visiting, expected post, favorite breakfast, the prospect of a pamper even checking the fish survived the night. The reason is unimportant but having one is vital. Stay Strong. We are here for you. πŸ›Œβ˜•πŸ±πŸ˜πŸ‘€xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                                Morning all. Engineer just rung on his way to sort my broadband hurrah at last. Hope something nice happens to you today everyone x
                                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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