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Morning everyone. I slept for 12 hours though I did take rather a collection of goodies to manage it. If it wasn't for my cat pushing the front room door backwards and forwards I would still be there now. I must oil the door it sounds like the effects used in a haunted house. πwhen i can think of something profound i will update this.
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Afternoon all ππ
Had a good sleep last night ππ
Coffee for breakfast, spicy bean stew for lunch - mushy, easy to eat, fill of fibre and added spiciness, does the job π
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Originally posted by keno View Postwe had a virtual meeting with the ace center who is coming to access me
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Originally posted by Ellie View PostAfternoon all ππ
Had a good sleep last night ππ
Coffee for breakfast, spicy bean stew for lunch - mushy, easy to eat, fill of fibre and added spiciness, does the job πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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keno did the assessment yesterday go well..can they help with the bed issue? π€
matthew55 sorry you've had a bad night π€
Rosemary6NT oh my that will be such a special reunion how lovely π
@LynneK thoughts with you for a quick recovery from today's procedureπ
Morning to everyone....no visits today so I'll be chillin'ππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Morning everyone.
Suns out. I managed to stick my finger through the sugar bag but managed to seal it up with brown tape before it went everywhere. I keep doing that.
Other week I tried to get the lid of a jar of coffee. Douwe egbert coffee in the fancy jar. Couldn't get it off so used a knife. Stuck it straight in my finger.
was contemplating putting sugar in fancy jar but might run out of fingers π
when i can think of something profound i will update this.
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Originally posted by LindaB View Postkeno did the assessment yesterday go well..can they help with the bed issue? π€
matthew55 sorry you've had a bad night π€
Rosemary6NT oh my that will be such a special reunion how lovely π
@LynneK thoughts with you for a quick recovery from today's procedureπ
Morning to everyone....no visits today so I'll be chillin'ππ
I fell in the shower this morning hard but only bruising. luckily I was in the range of an Alexa so was able to call for help
the grab handles are to high now to reachIt's all funny
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