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    Morning everyone.

    keno She'll be wearing a mask so won't noticeπŸ˜·πŸ˜‚πŸ˜‰

    I've got the local authority OT visiting this morning to assess...

    Thoughts with Lynne K & all our MND family in hospital or struggling. πŸ’™πŸ™
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      Morning everyone. I slept for 12 hours though I did take rather a collection of goodies to manage it. If it wasn't for my cat pushing the front room door backwards and forwards I would still be there now. I must oil the door it sounds like the effects used in a haunted house. πŸ™„
      when i can think of something profound i will update this.

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        we had a virtual meeting with the ace center who is coming to access me
        It's all funny

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          They were the ones I had. Brilliant peeps zπŸ‘πŸ˜πŸ˜œπŸͺxx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            Afternoon all 😘😘

            Had a good sleep last night πŸ‘πŸ‘

            Coffee for breakfast, spicy bean stew for lunch - mushy, easy to eat, fill of fibre and added spiciness, does the job πŸ˜‰

            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              Originally posted by keno View Post
              we had a virtual meeting with the ace center who is coming to access me
              Apt typo Ken πŸ‘πŸ‘ They'll be able to improve things for you 😘
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                Originally posted by Ellie View Post
                Afternoon all 😘😘

                Had a good sleep last night πŸ‘πŸ‘

                Coffee for breakfast, spicy bean stew for lunch - mushy, easy to eat, fill of fibre and added spiciness, does the job πŸ˜‰
                Spicy bean stew sounds idealπŸ€—πŸ˜‰πŸ˜˜
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                  good morning
                  spent most of the night in RR chair as its easier to get out of than bed
                  It's all funny

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                    Good morning all. Another hellish night. Heres hoping for a better day. πŸ€žπŸ€—πŸ˜΄πŸͺxx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      Good morning everyone. My son arrives from Thailand today, I haven’t seen him for over two years (covid). Joy and tears today.
                      Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                        keno did the assessment yesterday go well..can they help with the bed issue? πŸ€”

                        matthew55 sorry you've had a bad night πŸ€—

                        Rosemary6NT oh my that will be such a special reunion how lovely πŸ’–

                        @LynneK thoughts with you for a quick recovery from today's procedureπŸ™


                        Morning to everyone....no visits today so I'll be chillin'πŸ˜‰πŸ˜˜
                        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                          Morning everyone.
                          Suns out. I managed to stick my finger through the sugar bag but managed to seal it up with brown tape before it went everywhere. I keep doing that.
                          Other week I tried to get the lid of a jar of coffee. Douwe egbert coffee in the fancy jar. Couldn't get it off so used a knife. Stuck it straight in my finger.
                          was contemplating putting sugar in fancy jar but might run out of fingers πŸ™„
                          when i can think of something profound i will update this.

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                            Originally posted by LindaB View Post
                            keno did the assessment yesterday go well..can they help with the bed issue? πŸ€”

                            matthew55 sorry you've had a bad night πŸ€—

                            Rosemary6NT oh my that will be such a special reunion how lovely πŸ’–

                            @LynneK thoughts with you for a quick recovery from today's procedureπŸ™


                            Morning to everyone....no visits today so I'll be chillin'πŸ˜‰πŸ˜˜
                            they are coming to see me to see what can help
                            I fell in the shower this morning hard but only bruising. luckily I was in the range of an Alexa so was able to call for help
                            the grab handles are to high now to reach
                            It's all funny

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                              Good morning all 😘😘

                              And what a beautiful day it is 🌞🌞 A teasing glimpse that spring is just around the corner. xx
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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                                keno Poor you, hope you're not too sore Ken - thank goodness for Alexa πŸ‘πŸ‘πŸ˜˜
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

                                Comment

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