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    #2236
    Originally posted by Rosemary6NT View Post
    My son arrives from Thailand today, I haven’t seen him for over two years (covid). Joy and tears today.
    Oh how wonderful for you all - enjoy the reunion, tears and all 😘😘
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
    ​
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      #2237
      keno sorry to hear you had a fall...glad no serious injury...although it still shakes you up. Take careπŸ€—
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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        #2238
        Originally posted by Ellie View Post
        keno Poor you, hope you're not too sore Ken - thank goodness for Alexa πŸ‘πŸ‘πŸ˜˜
        laying naked in the shower while two guys pull you up is traumatic
        It's all funny
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          #2239
          Originally posted by keno View Post
          laying naked in the shower while two guys pull you up is traumatic
          You say tomato... πŸ˜‰

          Seriously though, that does sound traumatic and having wet skin makes holding you even more precarious. 😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
          ​

          Comment

            #2240
            Originally posted by Ellie View Post

            You say tomato... πŸ˜‰

            Seriously though, that does sound traumatic and having wet skin makes holding you even more precarious. 😘😘
            my nephew making jokes about the size of my dangly bits didn't help
            It's all funny
            • Likes 3

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              #2241
              Originally posted by Ellie View Post

              You say tomato... πŸ˜‰

              Seriously though, that does sound traumatic and having wet skin makes holding you even more precarious. 😘😘
              ooh just realized what you meant
              It's all funny
              • Likes 1

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                #2242
                Originally posted by keno View Post
                my nephew making jokes about the size of my dangly bits didn't help
                I should say not but bet it eased the tension (of the situation I mean, before any Smart Alec quips)

                He must know about your It's all funny signature. 😘😘
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                ​
                • Likes 1

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                  #2243
                  Time to reevaluate your hygiene regime me thinks. πŸ˜ŠπŸ˜œπŸ€—πŸͺxx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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                    #2244
                    Originally posted by matthew55 View Post
                    Time to reevaluate your hygiene regime me thinks. πŸ˜ŠπŸ˜œπŸ€—πŸͺxx
                    yes ur right
                    It's all funny
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                      #2245
                      starting to ache now but not too bad
                      It's all funny

                      Comment

                        #2246
                        Originally posted by keno View Post
                        starting to ache now but not too bad
                        Oh Ken, I'm sorry to hear that - have you ibuprofen or other painkillers you could take? I hate to think you'd be even more uncomfortable sleeping in your RR tonight πŸ˜ŸπŸ€—πŸ€—
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                        ​
                        • Likes 1

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                          #2247
                          Originally posted by Ellie View Post
                          Oh Ken, I'm sorry to hear that - have you ibuprofen or other painkillers you could take? I hate to think you'd be even more uncomfortable sleeping in your RR tonight πŸ˜ŸπŸ€—πŸ€—
                          Thank you Ellie it does not hurt that much I'm ok.
                          my brother is going to lower the grab handles in the shower tomorrow so i can have a better grip
                          It's all funny
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                            #2248
                            good morning all
                            It's all funny

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                              #2249
                              Good morning. Another hill to climb together. πŸ€—πŸ˜πŸ˜˜πŸͺxx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                                #2250
                                Morning everyone. Have the best day possible🌞🌞

                                keno hope you're less sore today..🚿

                                Lynne K hoping all is well and you'll soon be out of hospitalπŸ™πŸ’™
                                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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