Good morning everyone. What Linda said. π
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Good morning all ππ
Had a few gaspy episodes during the night but went back asleep ππ
πππ₯Άπ₯Ά today and I hear we're in for even colder weather and some places are in for snow and ice over the next few days, so take care. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by keno View Postthe fall has knocked some sense into me
I was thinking that maybe your friend or nephew could pick up up a little stool/seat for the shower as it might be a week or so before the nurse/OT sorts one out. They're cheap enough and widely available (Argos to Amazon) xx
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by Ellie View PostIt's a hard lesson to learn Ken but one we've all learned!
I was thinking that maybe your friend or nephew could pick up up a little stool/seat for the shower as it might be a week or so before the nurse/OT sorts one out. They're cheap enough and widely available (Argos to Amazon) xxIt's all funny
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Morning everyone. We had a fall back in January. I tried to help Stephen from a kneeling position and it resulted in us both falling. Now have a painful hip and knee and Stephen is fine. π Strange in that it took 2 weeks to become really painful.
the sun is out its beautiful here and the back door is open. Just hope that squirrel doesn't nip in and pinch the cat food.when i can think of something profound i will update this.
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Morning campers...sun is shining brightly & the frost is sparkling.
Have a good one ππππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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keno that's a relief that they'll come to you for blood tests. I use a bath swivel seat for showers (I've got a shower over my tub) could you use? My OT from the hospice team ordered for me.
π€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Afternoon all ππ
The frost has disappeared, but so has the ππ
Good sleep, good coffee, good friends dropped in, good times ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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