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    Good morning one and all. Hope Saturday is as good as it can be. Stay safeπŸ’™

    Rugby today🏈🏈🍺😊
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      Morning.
      Got up 6.15 with dogs, but decided it was far too cold so straight back to a cosy bed for a couple more hours🀣

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        That wind is freezing. I ran out to put a sheet out but I'm worried about it blowing away. Really don't need to be out for long. πŸ₯°πŸ€—πŸ˜˜
        when i can think of something profound i will update this.

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          Afternoon all 😘😘

          Yup, it's πŸ₯ΆπŸ₯Ά which is a great excuse for staying in and watching the 🏈🏈 xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            Yes indeed, out on mobility scooter with dogs midday, 2 pairs of thermal socks, super warm boots....feet still like blocks of iceπŸ₯Ά

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              Originally posted by Ellie View Post
              Afternoon all 😘😘

              Yup, it's πŸ₯ΆπŸ₯Ά which is a great excuse for staying in and watching the 🏈🏈 xx
              Wales played better a good match🏈🏈

              Now for Ireland v FranceπŸ€πŸˆπŸˆπŸ€
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                I hope Olivia had more than warm socks and boots 😳 on.
                when i can think of something profound i will update this.

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                  Blowing hard up here in Cumbria

                  Plenty of food and TV

                  Happy Weekend All
                  Donna

                  Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

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                    LindaB Ireland gave away 18 points in penalties... 😟

                    Let's see how many tries England run in tomorrow to atone for last week 😏🏈 😘
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      Ellie was a great game to watch...sorry it wasnt a win for Ireland.

                      Let's hope England show up tomorrow 🏈
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                        good morning all
                        It's all funny

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                          Good morning keno and everyone
                          Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                            Morning everyone. What a horrible day. A staying indoors day. Possibly a staying in bed day. 😐
                            when i can think of something profound i will update this.

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                              Morning everyone...watching the Olympics with a cuppa....now for wordleπŸ€”πŸ˜‰πŸ˜˜
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                                my brother came up this morning to get me in the shower but i am very unstable in and out.
                                waiting for a care package to be put together and as it's getting impossible to take shower it looks like bedbaths.
                                the problem is that I don't know what a bedbath is so can you explain, please
                                It's all funny

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