Good morning one and all. Hope Saturday is as good as it can be. Stay safeπ
Rugby todayπππΊπ
Rugby todayπππΊπ
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
Morning.
Got up 6.15 with dogs, but decided it was far too cold so straight back to a cosy bed for a couple more hoursπ€£Comment
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That wind is freezing. I ran out to put a sheet out but I'm worried about it blowing away. Really don't need to be out for long. π₯°π€πwhen i can think of something profound i will update this.Comment
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Afternoon all ππ
Yup, it's π₯Άπ₯Ά which is a great excuse for staying in and watching the ππ xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Yes indeed, out on mobility scooter with dogs midday, 2 pairs of thermal socks, super warm boots....feet still like blocks of iceπ₯ΆComment
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Wales played better a good matchππOriginally posted by Ellie View Post
Now for Ireland v FranceππππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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I hope Olivia had more than warm socks and boots π³ on.when i can think of something profound i will update this.Comment
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Blowing hard up here in Cumbria
Plenty of food and TV
Happy Weekend AllDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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LindaB Ireland gave away 18 points in penalties... π
Let's see how many tries England run in tomorrow to atone for last week ππ πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Ellie was a great game to watch...sorry it wasnt a win for Ireland.
Let's hope England show up tomorrow π
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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good morning all
It's all funnyComment
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Good morning keno and everyoneDiagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Morning everyone. What a horrible day. A staying indoors day. Possibly a staying in bed day. πwhen i can think of something profound i will update this.Comment
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Morning everyone...watching the Olympics with a cuppa....now for wordleπ€ππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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my brother came up this morning to get me in the shower but i am very unstable in and out.
waiting for a care package to be put together and as it's getting impossible to take shower it looks like bedbaths.
the problem is that I don't know what a bedbath is so can you explain, pleaseIt's all funnyComment
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