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    Good morning. My new friend back pain has forced me up. Happy Days! πŸ˜πŸ˜€πŸ€—πŸ¦…xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      good morning
      hope the pain does not hang about Mathew
      It's all funny

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        matthew55 boo to back pain. Morning all.
        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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          Morning all...Happy Valentine's Day....here's some love from me❀

          ​​
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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            Originally posted by matthew55 View Post
            Good morning. My new friend back pain has forced me up. Happy Days! πŸ˜πŸ˜€πŸ€—πŸ¦…xx
            Hope pain relief has kicked inπŸ˜πŸ™
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              Happy Valentine's Day to you all πŸ’–πŸ’–

              A gentle Valos hug to you matthew55 I hope you can find a solution to your back pain. πŸ€—πŸ€—
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                OT popped in today and she is getting grab rails and a rail down one side of the passageway.
                Staffordshire care has started to put together a care package too. morning wash and dress
                ot sorted bed to so sleeping in it tonight
                It's all funny

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                  keno Great stuff Ken πŸ‘πŸ‘
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    My pain disappears as soon as I sit down thankfully.πŸ€—πŸ˜€πŸ˜˜πŸ˜xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      Morning all. Hope today is the best it can be...whatever the weather πŸŒžπŸŒ¦β˜”β˜”πŸ˜˜
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                        good morning
                        ot sorted my bed out and slept in it last night
                        9 hours 40 minutΓ©s
                        It's all funny

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                          keno sounds like a good night's sleep ...makes all the difference πŸ˜‰πŸ€—
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                            Good morning to everyone. My night was disjointed. My new normality. 😴😊😎🌹xx
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                              Good morning World 😘😘 I'm still here 😏

                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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                                keno 9h 40 Ken, that's fab πŸ‘πŸ‘πŸ˜˜
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

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