This morning it bucketed, then it snowed, then the sun came out and I was sunbathing. Then it snowed. Nothing like variety.
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when i can think of something profound i will update this. -
My brother has tested positive for covid so expecting to get it.
Told the carer and she said they would still see to me even if I had.It's all funnyComment
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Sorry to hear that & hope you haven't picked up covidππOriginally posted by keno View Post
There is anti viral medication available to us - worse case scenarioπInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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we all have to sometime.
close after booster may be better
found another symptom my brother is grumpy
It's all funnyComment
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keno Grumpiness aside, I hope your brother has a mild dose of Covid. ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Morning everyone. Blue sky. I'm still in bed contemplating getting up. Stephen is snoring so there's no rush. No sneezing yet this morning and my nose isn't running though I am lying down. Could it be it's gone?
when i can think of something profound i will update this.Comment
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Morning all
had a temperature of 37.4 yesterday and a headache but back to 36.9 now and no headache.
Brother was feeling better last nightIt's all funnyComment
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Thank you. yes I feel better this morningOriginally posted by LindaB View PostIt's all funnyComment
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CHC assessment this morning. Also district nurse to check possible catheter blockage and sore skin abrasions on my nether regions! But at least Iβm not in the Ukraine π. Happy daysβ¦Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Good morning my fellow adaptors. Another Friday reached, and another massive hill to climb. Thankfully we have experienced climbers to help us over to Monday. ππππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Rosemary6NT good luck with CHC assessment....warning they can go on and on. Hope you've someone there to argue any points you may disagree with.
Hope the DN sorts our your nether regionsππ
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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matthew55 morning Bagpuss...πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Just had a Tesco delivery....I had to laugh as the chap when hearing my attempt at talking proceeded to use some sort of sign language...I wanted to say I can hear perfectly...but I just smiledππ¬Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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