Good Morning to all, and an Efficient Sunstart to all those old enough to remember Luna.
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Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring. -
Morning peeps. Sun is shining & I've slept reasonably well....yippeeπ
Stay safe & warmπInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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No clueπ€Originally posted by WheelsOfSteel View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Luna? Please explain or I will be thinking about this all day π€when i can think of something profound i will update this.Comment
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Luna was a family TV comedy show from the Eighties (starring a very young Patsy Kensit
). Fan site here: Lunaviron (randomstatic.net)
It had a Science Fiction theme, so they created a futuristic dialect for the script.
Instead of "good morning" the standard greeting was "efficient sunstart".
...I'll get my coat
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Terrible night so I'll not be here todayBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Dear Eddie
I must have missed that. But then in the 80's I was a grown up.
Bless xxwhen i can think of something profound i will update this.Comment
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Good afternoon all ππ
And happy International Women's Day to each and every one of my forum sisters π―ββοΈπ―ββοΈπ―ββοΈ We rock πͺπͺπͺβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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And on behalf of the chaps here present, I offer a hearty salute to you wonderful women everywhere.
Happy International Women's Day.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Sorry to hear thatπ€take careOriginally posted by matthew55 View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Thank you Eddie πwhen i can think of something profound i will update this.Comment
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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WheelsOfSteel Thanks Eddie ππ xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Wishing you lots of energy, sleep and motivation.Originally posted by matthew55 View PostRichardComment
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