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    Morning everyone. Hope Matthew had a better night. Cold wind this morning.
    😘
    when i can think of something profound i will update this.

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      Morning all. A bit of a dull start in my neck of the woods. Hope you slept well and that today is a good day...stay safeπŸ˜ŽπŸ€—

      matthew55 new day and hopefully a better one for youπŸ€—
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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        good morning
        just spent most of my savings on a stairlift at my brothers.
        Acorn 180
        It's all funny

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          keno will be worth it to have your lovely family weekends πŸ·πŸ°πŸ‘πŸ»

          Could you ask for financial support from MNDA?
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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            Originally posted by LindaB View Post
            keno will be worth it to have your lovely family weekends πŸ·πŸ°πŸ‘πŸ»

            Could you ask for financial support from MNDA?
            no idea but I just want it now so I can still have weekends there.
            Β£5300 would get you a ten-year-old car these days.
            It's all funny

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              I got a second hand one. It's great. I use it for Stephen and my shopping. Well worth it.
              when i can think of something profound i will update this.

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                Originally posted by denise View Post
                I got a second hand one. It's great. I use it for Stephen and my shopping. Well worth it.
                looking forward to it
                if i can get on it for family playing on it
                It's all funny

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                  My cat was sitting on it the other day. I used it for moving a toilet cistern upstairs. Every home should have one. πŸ™‚ I just wish it would go faster. πŸ™‚
                  when i can think of something profound i will update this.

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                    Good morning my fellow adaptors. Slept from 10 until 9 feeling a bit better.
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      Welcome back matthew55
                      Hi, I'm Eddie.
                      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                      Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                      Still wondering what the future will bring.

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                        Wow here he is!! πŸ˜˜πŸ’•
                        when i can think of something profound i will update this.

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                          Afternoon world 😘😘

                          Been tipping it down here since 10am πŸ˜‘

                          Had my locks trimmed so can now see, a particular bonus for eye gaze πŸ‘€ users πŸ‘πŸ‘
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            Originally posted by keno View Post
                            just spent most of my savings on a stairlift at my brothers.
                            I'd say that's money well spent Ken.πŸ‘πŸ‘

                            Perhaps you could recoup some of its cost by charging the local kids for a go on it 😏
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              Morning chicks. Seagulls are making a lot of noise.

                              Not sure what the weather is for today. About time the sun 🌞 came out.
                              when i can think of something profound i will update this.

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                                Good morning my fellow survivors. Another day, another challenge. Togetherness is our strength. πŸ’ͺ😎😘😁xx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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