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    My thoughts and prayers are with you
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      Good morning all
      It's all funny

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        Morning everyone. SALT team visit today....aren't I the popular oneπŸ˜‡πŸ€”πŸ™„

        Left me a styllus which I'm using to type this editπŸ˜‡

        We discussed diet...speech....and of course a PEG. I told her that's shelved for now. πŸ‘πŸ»
        Last edited by LindaB; 23 March 2022, 12:10.
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          Good 🌞🌞 day y'all 😘😘

          I actually had to take a break from catching up on today's posts after seeing so many wannabe threads, it is utterly soul destroying 😟

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            LindaB Hopefully you'll get some me time now 😘

            Did you sleep well enough?
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              keno Was it this week your 9pm carer started? If it was, how is it working out? 😘😘
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                Originally posted by Ellie View Post
                LindaB Hopefully you'll get some me time now 😘

                Did you sleep well enough?
                Yes indeed slept well😘

                What do you mean wannabe?πŸ€”
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                  Originally posted by LindaB View Post
                  What do you mean wannabe?πŸ€”
                  Those convinced they have ALS... xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    Originally posted by Ellie View Post
                    Those convinced they have ALS... xx
                    Oh yes I daren't reply as may offend....I've noticed we've had quite a few 🀐
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                      Originally posted by Ellie View Post
                      keno Was it this week your 9pm carer started? If it was, how is it working out? 😘😘
                      yes it's working well
                      never been tucked in since i was a kid
                      good morning all
                      It's all funny

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                        Morning everyone...

                        keno​​​​​​​ lovely to be made comfy...I hope...πŸ˜‰πŸ€—xx
                        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                          Not many in the club lately. πŸ™
                          when i can think of something profound i will update this.

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                            Afternoon peeps 😘😘

                            keno Glad to hear you're being safely tucked into bed πŸ‘πŸ‘πŸ˜š
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              Morning everyone. Looks like a lovely day. Was like this when we married 40 years ago.
                              πŸ™‚
                              when i can think of something profound i will update this.

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                                Good morning all.
                                MND clinic this afternoon
                                It's all funny

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