Good morning my fellow adaptors. Another week to take day by day. πππ€πxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Hello All,
Not up at stupid o'clock
Happy New weekDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Afternoon all ππ
I definitely missed reveille - hopefully I'll escape being court martialled. πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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It's 3.20AM.
Planning on going back to bed after another episode of TV.
Does that still count????Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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People of Earth - Greetings!
DeeHβββββββ Nope, doesn't count if you go back to bed π΄Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning earthlings.
Donna what are you watching? 3.20am it must be good!
π€£ππ³when i can think of something profound i will update this.Comment
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Good moaningIt's all funnyComment
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denise
We are binged watching Criminal Minds and swopping with the Sci Fi Series Santuary, both on Prime.
WheelsOfSteel
I read my comment. We did go to bed. Just Thomas gets uncomfortable and sometimes we get up and watch some TV.
Now back up at 09.10 for coffee.Donna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Morning people...π
Local authority OT & surveyor here pm to look at outside steps & stair liftπ....& on it goes...
ββββββTime for wordleπ€πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good morning my fellow survivors. Just another day in paradise. π΄πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Good luck Linda. Then it will take them forever to contemplate. π€¨when i can think of something profound i will update this.Comment
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G'day everyone ππ
I haven't had my lunch yet, so it's still kinda morning for me ππ
LindaBβββββββ All I can say is π€π€ xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ken, you crack me up - thanks for the chuckle πππOriginally posted by keno View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Morning one & all....have the best day possibleππ
Daughter stayed over last night...nice to have breakfast & cuppa made for meπInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good morning my fellow livers. Another hump, another day. πͺππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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