Announcement

Collapse
No announcement yet.

Early Bird Club

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Good morning my fellow adaptors. Another week to take day by day. πŸ‘πŸ˜πŸ€—πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    Comment


      Hello All,

      Not up at stupid o'clock

      Happy New week
      Donna

      Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

      Comment


        Afternoon all 😘😘

        I definitely missed reveille - hopefully I'll escape being court martialled. 😏
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

        Comment


          It's 3.20AM.

          Planning on going back to bed after another episode of TV.

          Does that still count????
          Donna

          Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

          Comment


            People of Earth - Greetings!
            DeeH​​​​​​​ Nope, doesn't count if you go back to bed 😴
            Hi, I'm Eddie.
            Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
            Still walking and talking, and wondering what the future will bring.

            Comment


              Morning earthlings.

              Donna what are you watching? 3.20am it must be good!

              🀣😘😳
              when i can think of something profound i will update this.

              Comment


                Good moaning
                It's all funny

                Comment


                  denise

                  We are binged watching Criminal Minds and swopping with the Sci Fi Series Santuary, both on Prime.

                  WheelsOfSteel

                  I read my comment. We did go to bed. Just Thomas gets uncomfortable and sometimes we get up and watch some TV.

                  Now back up at 09.10 for coffee.
                  Donna

                  Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

                  Comment


                    Morning people...πŸ˜‰

                    Local authority OT & surveyor here pm to look at outside steps & stair liftπŸ™„....& on it goes...


                    ​​​​​​Time for wordleπŸ€”πŸ˜˜
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                    Comment


                      Good morning my fellow survivors. Just another day in paradise. πŸŒ΄πŸ‘ŒπŸ‘πŸ˜xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                      Comment


                        Good luck Linda. Then it will take them forever to contemplate. 🀨
                        when i can think of something profound i will update this.

                        Comment


                          G'day everyone 😘😘

                          I haven't had my lunch yet, so it's still kinda morning for me πŸ˜‰πŸ˜

                          LindaB​​​​​​​ All I can say is 🀞🀞 xx
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

                          Comment


                            Originally posted by keno View Post
                            Good moaning
                            Ken, you crack me up - thanks for the chuckle 😊😘😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

                            Comment


                              Morning one & all....have the best day possibleπŸ˜˜πŸ’™

                              Daughter stayed over last night...nice to have breakfast & cuppa made for meπŸ˜‡
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                              Comment


                                Good morning my fellow livers. Another hump, another day. πŸͺπŸ˜πŸ€—πŸ˜œxx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                                Comment

                                Working...
                                X