Good morning all, beautiful spring day ππ
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Yikes π² that πͺ sure runs fast - that week flew by ππOriginally posted by matthew55 View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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I forgot to do this!! Morning everyone. Suns out.
ππ€πwhen i can think of something profound i will update this.Comment
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Late today, an early visit from MND nurse.
Good afternoon allIt's all funnyComment
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Good morning all, weather looks promising here, misty but sunny start π and the birds are singing their hearts out.
I'm not normally up this early but I have an appointment at the wheelchair clinic at 9am to assess for a powered wheelchair π
My carer is coming at 7am (instead of the usual time of 9am) to help me shower.
Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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Morning all.
Misty here too. Tabbycat have fun at the wheelchair assessment.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning everyone. Was very foggy last night looking out the window. Damp and miserable start. Seagulls have taken to looking in our hallway window from the roof. My cats are not pleased. πwhen i can think of something profound i will update this.Comment
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Good morning allIt's all funnyComment
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Went out to my car and a dead pigeon, not even a carcass, inbetween kerb and car door of the passenger seat. Feathers everywhere. πwhen i can think of something profound i will update this.Comment
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Good morning my fellow livers. Four days of purgatory when a chocolate egg is a torment. But together we will see it through. Trust me. ππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Late on paradeπ but a belated Good Morning/afternoon ππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Well, at least you weren't last in last place LindaB π
So... good afternoon all - meh day here. ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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I'm thinking some people just aren't on gmt. π€when i can think of something profound i will update this.Comment
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Good morning!! One advantage of not getting my usual good 11 hours sleep is that I'm here bright and early.
The sun is shining and hopefully someone will bring me a drink a pop a pretty dress on me today (as I still have no carers, that someone will need to be hubby π€£)
Have a good day everyone xxDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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Good morning playmates!
We survive to fight another day.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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