Morning everyone. The sun isn't out yet but think it will be a lovely day. Dont think it's a day for travelling. π
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when i can think of something profound i will update this. -
Good morning allIt's all funnyComment
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Good morning my fellow cave dwellers. Just three to go. All together now. ππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Morning all....lovely sunny startπππ
Don't envy people travelling this Easter....chaos.
Have the best day possible.ππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Happy Friday afternoon ππ
Good sleep is a great way to start the day but, add in a lovely friend popping in for coffee, and it's a π° day ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Morning Munchkins!
I live on hill and I'm looking down on a blanket of mist with tree tops poking through.
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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20220416_073922.jpg snap does not do it justiceHi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning everyone. Foggy here too. Lots of fog around the last few days. πwhen i can think of something profound i will update this.Comment
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Morning all
Love the photo WheelsOfSteel π
No fog here....glorious sunshine π
Granddaughter and her two little dogs coming to me today & staying overπ
Have the best day possible everyone...
Now for wordleβ
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good morning my fellow survivors. Fight the good fight. ππͺπ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Its wonderful here. Sitting in the sun. Just chilling.
πwhen i can think of something profound i will update this.Comment
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Afternoon peeps ππ
WheelsOfSteel Is your house high up Eddie? Lovely photo, quite ethereal. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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WheelsOfSteel Is your house high up Eddie?[/QUOTE]
I live on an island, surrounded on all sides by a loop of the river and a canal.
We are 100 feet up the only hill in the area.
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Our very own Robinson Crusoe ππ or perhaps it's more of a Heath Robinson situation π πOriginally posted by WheelsOfSteel View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Happy Easter folks!
A day for celebrating life and resurrection.
Rather ironic for us really
Hang in there my lovelies, and have a great day with your loved ones.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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