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    Happy Easter everyone πŸ˜˜πŸ€—πŸŒžπŸ£
    when i can think of something profound i will update this.

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      πŸ”πŸ€πŸ£πŸ°have the best day possibleπŸ™πŸ˜˜
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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        Happy Easter 🐣 πŸ₯š
        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

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          Sorry I'm so late to the Easter Bonnet Parade - just couldn't get my πŸ‘’ to stay on, no matter how many hatpins I used πŸ™‚ 😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            I'm even later Ellie! Ate too much Easter egg πŸ˜†

            Happy Easter everyone. I hope the sun shone for you all and something made you smile today xx
            Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

            Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

            Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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              Happy Easter Monday

              06.43

              Will not be going back to bed today.

              Hugs all round
              Donna

              Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

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                Yep, what she said. Beat me by 6 minutes
                Hi, I'm Eddie.
                Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                Still walking and talking, and wondering what the future will bring.

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                  Lol, I'm a day late for the Easter paradeπŸ˜†πŸ£πŸ° Hubby said not an Easter Egg to be had in shops on Saturday, but large bar of choccy a welcome substitute😁

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                    Morning everyone. I haven't had any chocolate. I did get some rhubarb and custard sweets. Haven't had them for years. Took me back to when I used to get 3d or 6d for sweets.
                    🌞
                    when i can think of something profound i will update this.

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                      Good morning all
                      It's all funny

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                        Good morning my fellow survivors. Another journey to take in company. πŸ‘πŸ˜πŸ˜˜πŸ€—xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          Once more unto the breach, dear friends, once more... 😘😘
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            Phew....morning πŸ˜‡
                            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                              Originally posted by Ellie View Post
                              Once more unto the breach, dear friends, once more... 😘😘
                              should be once more onto the beach
                              It's all funny

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                                Originally posted by keno View Post
                                should be once more onto the beach
                                Ooh, wouldn't that be nice Ken - when we win the Euromillions, we'll buy loads of those big-wheeled beach wheelchairs and take ourselves off somewhere πŸ˜‰πŸ˜˜πŸ˜˜
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

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