Happy Easter everyone ππ€ππ£
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when i can think of something profound i will update this. -
ππ€π£π°have the best day possibleππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Happy Easter π£ π₯Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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Sorry I'm so late to the Easter Bonnet Parade - just couldn't get my π to stay on, no matter how many hatpins I used π ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I'm even later Ellie! Ate too much Easter egg π
Happy Easter everyone. I hope the sun shone for you all and something made you smile today xxDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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Happy Easter Monday
06.43
Will not be going back to bed today.
Hugs all roundDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Yep, what she said. Beat me by 6 minutes
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Lol, I'm a day late for the Easter paradeππ£π° Hubby said not an Easter Egg to be had in shops on Saturday, but large bar of choccy a welcome substituteπComment
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Morning everyone. I haven't had any chocolate. I did get some rhubarb and custard sweets. Haven't had them for years. Took me back to when I used to get 3d or 6d for sweets.
πwhen i can think of something profound i will update this.Comment
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Good morning allIt's all funnyComment
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Good morning my fellow survivors. Another journey to take in company. ππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Once more unto the breach, dear friends, once more... ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Phew....morning πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Ooh, wouldn't that be nice Ken - when we win the Euromillions, we'll buy loads of those big-wheeled beach wheelchairs and take ourselves off somewhere πππOriginally posted by keno View Postshould be once more onto the beach
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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