Happy Easter everyone ππ€ππ£
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when i can think of something profound i will update this. -
ππ€π£π°have the best day possibleππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Happy Easter π£ π₯Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive πΊ.Comment
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Sorry I'm so late to the Easter Bonnet Parade - just couldn't get my π to stay on, no matter how many hatpins I used π ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I'm even later Ellie! Ate too much Easter egg π
Happy Easter everyone. I hope the sun shone for you all and something made you smile today xxDiagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.Comment
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Happy Easter Monday
06.43
Will not be going back to bed today.
Hugs all roundDonna
Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.Comment
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Yep, what she said. Beat me by 6 minutes
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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Lol, I'm a day late for the Easter paradeππ£π° Hubby said not an Easter Egg to be had in shops on Saturday, but large bar of choccy a welcome substituteπComment
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Morning everyone. I haven't had any chocolate. I did get some rhubarb and custard sweets. Haven't had them for years. Took me back to when I used to get 3d or 6d for sweets.
πwhen i can think of something profound i will update this.Comment
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Good morning allIt's all funnyComment
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Good morning my fellow survivors. Another journey to take in company. ππππ€xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Once more unto the breach, dear friends, once more... ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Phew....morning πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Ooh, wouldn't that be nice Ken - when we win the Euromillions, we'll buy loads of those big-wheeled beach wheelchairs and take ourselves off somewhere πππOriginally posted by keno View Postshould be once more onto the beach
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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