Announcement

Collapse
No announcement yet.

Early Bird Club

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Originally posted by LindaB View Post
    Phew....morning πŸ˜‡
    Nice to see you 'Pulling an Ellie' πŸ‘πŸ˜‚πŸ˜˜
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

    Comment


      Hey up m'dearios
      Hope you all had a lovely (sunny!) Easter.
      Welcome to the first day of the rest of your life.
      Hi, I'm Eddie.
      Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
      Still walking and talking, and wondering what the future will bring.

      Comment


        Morning everyone. Suns out and sky is blue. Did that yesterday but it was rather chilly. Hope today is better.
        😘
        when i can think of something profound i will update this.

        Comment


          Good morning my fellow strugglers. The road may be short or long but at least it is travelled in good company. πŸ˜πŸ€—πŸ˜­πŸ˜˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

          Comment


            Morning all...here we are againπŸ™πŸ˜˜πŸŒž
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

            Comment


              Goooood Morning!
              Another bright day of fun and games, so tag - you're it.
              See you by the pool. Last one in's a cissy
              Last edited by WheelsOfSteel; 20 April 2022, 07:09.
              Hi, I'm Eddie.
              Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
              Still walking and talking, and wondering what the future will bring.

              Comment


                Ok im up for a dip. It's a bit chilly here but what the hell. πŸ™‚πŸŠβ€β™€οΈπŸ€½β€β™€οΈ
                when i can think of something profound i will update this.

                Comment


                  Good moaning all.
                  ACE coming today to see how they can help with tech
                  It's all funny

                  Comment


                    Originally posted by WheelsOfSteel View Post
                    Goooood Morning!
                    Another bright day of fun and games, so tag - you're it.
                    See you by the pool. Last one in's a cissy
                    πŸŠβ€β™€οΈ count me in πŸ˜ƒ
                    Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

                    Comment


                      Morning everyone...I'll just observe everyone jumping in....sit on a sun lounger reading🍹

                      Hope the visit goes well keno πŸ‘πŸ»πŸ˜˜
                      Last edited by LindaB; 20 April 2022, 13:05.
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                      Comment


                        Good morning. As oddjob said it 'Time is fleeting but not for very much longer. Can you name that musical?
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                        Comment


                          Afternoon one and all 😘😘

                          Cooee - here, on the lilo, in the pool, 🍸 in hand... that's me 😎
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

                          Comment


                            Originally posted by keno View Post
                            ACE coming today to see how they can help with tech
                            Oh goody, hope they come up with workable solutions for you 🀞🀞😘

                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

                            Comment


                              Morning everyone. Looks like it could be a nice day. My cat chased my bare legs and stuck his nails in. I'm now dripping blood. 🐱😳
                              when i can think of something profound i will update this.

                              Comment


                                Good morning all
                                It's all funny

                                Comment

                                Working...
                                X