Originally posted by LindaB
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Hey up m'dearios
Hope you all had a lovely (sunny!) Easter.
Welcome to the first day of the rest of your life.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
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Goooood Morning!
Another bright day of fun and games, so tag - you're it.
See you by the pool. Last one in's a cissyLast edited by WheelsOfSteel; 20 April 2022, 08:09.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
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Originally posted by WheelsOfSteel View PostGoooood Morning!
Another bright day of fun and games, so tag - you're it.
See you by the pool. Last one in's a cissyStarted limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.
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Morning everyone...I'll just observe everyone jumping in....sit on a sun lounger readingπΉ
Hope the visit goes well keno ππ»πLast edited by LindaB; 20 April 2022, 14:05.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Originally posted by keno View PostACE coming today to see how they can help with tech
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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