Originally posted by LindaB
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Nice to see you 'Pulling an Ellie' πππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Hey up m'dearios
Hope you all had a lovely (sunny!) Easter.
Welcome to the first day of the rest of your life.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning everyone. Suns out and sky is blue. Did that yesterday but it was rather chilly. Hope today is better.
πwhen i can think of something profound i will update this.Comment
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Good morning my fellow strugglers. The road may be short or long but at least it is travelled in good company. ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Morning all...here we are againπππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Goooood Morning!
Another bright day of fun and games, so tag - you're it.
See you by the pool. Last one in's a cissy
Last edited by WheelsOfSteel; 20 April 2022, 08:09.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Ok im up for a dip. It's a bit chilly here but what the hell. ππββοΈπ€½ββοΈwhen i can think of something profound i will update this.Comment
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Good moaning all.
ACE coming today to see how they can help with techIt's all funnyComment
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πββοΈ count me in πOriginally posted by WheelsOfSteel View PostGoooood Morning!
Another bright day of fun and games, so tag - you're it.
See you by the pool. Last one in's a cissyStarted limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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Morning everyone...I'll just observe everyone jumping in....sit on a sun lounger readingπΉ
Hope the visit goes well keno ππ»πLast edited by LindaB; 20 April 2022, 14:05.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good morning. As oddjob said it 'Time is fleeting but not for very much longer. Can you name that musical?Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Afternoon one and all ππ
Cooee - here, on the lilo, in the pool, πΈ in hand... that's me πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Oh goody, hope they come up with workable solutions for you π€π€πOriginally posted by keno View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Morning everyone. Looks like it could be a nice day. My cat chased my bare legs and stuck his nails in. I'm now dripping blood. π±π³when i can think of something profound i will update this.Comment
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Good morning allIt's all funnyComment
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