Morning everyone. Glorious sunshine in my neck of the woods ๐๐ป
Had a โpoor meโ day yesterday however new day new mindset๐๐๐ฅฐ
Had a โpoor meโ day yesterday however new day new mindset๐๐๐ฅฐ
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโ -
๐ณ Afternoon folks ๐๐
We're expecting rain later - well, it is a Bank Holiday weekend ๐ - but the ground needs it (apparently...)โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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You wouldn't be human if you didn't have those days ๐ค๐ค๐ค๐ค๐Originally posted by LindaB View PostโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Seagulls are using my car as a target. ๐ฉ I was going to clean it but if Putin is going to nuke the UK I'm thinking WHY bother?๐ณ do you think we will get a warning? ๐คwhen i can think of something profound i will update this.Comment
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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Alright dudes!
Hey nonny nonny, and a merry Mayday to you all.
I couldn't make it up the hill to greet the sunrise with the Morris dancers this morning.
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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Its raining here so I didn't bother either. ๐คwhen i can think of something profound i will update this.Comment
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Morning all. Granddaughter here and sheโs decided I need high calorie smoothiesโฆ.I await this โjoyโ.
Have the best of daysโฆ.๐ฅฐ๐Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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Greeting to all on the first day of May ๐ ๐ Although it's more of a โ day than a ๐ one ๐โDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ooh, sounds good - we await the verdict ๐๐Originally posted by LindaB View PostโDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Morning all
Last day at the seaside in Salcombe today.
Home this afternoon, and test driving a WAV van tomorrow
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Still walking and talking, and wondering what the future will bring.Comment
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You have all the fun.
morning everyone xxwhen i can think of something profound i will update this.Comment
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Morning one & all.
Bank holidays Iโve always found boring. At least we have snooker๐ฅณ
Stay safe people๐๐ป๐Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โโโโโโComment
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Good morning my fellow warriors. Another day, another battleBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐ค๐๐ค๐xxComment
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