Morning all ππ
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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good afternoon all
had fall last night coming in the house. trouble with steps nowIt's all funnyComment
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oh keno. i know how you feel my husband is in exactly the same situation. its really upsetting.
xxxwhen i can think of something profound i will update this.Comment
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Oh no sorry to hear that....hoping no serious injury....Sending a gentle hugπ€πOriginally posted by keno View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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keno Sorry to hear that Sweetie - it's always horrible to have a fall π₯π₯
And you've some internal steps downstairs too I think, is that one of the issues the OT flagged?
Look after yourself Ken π€πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning everyoneβ¦have the best day possible.
π₯°πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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woke at 2am struggling to breathe, mnd nurse coming tomorrowIt's all funnyComment
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Afternoon everyone.
Stephen is snoring and I'm having asthma problems. Makes me think tree and grass pollen. π€when i can think of something profound i will update this.Comment
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Short life long term funBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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You're having a tough time just now. Hoping you get some solutions asapππOriginally posted by keno View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Happy Star Wars Day!
May the Fourth be with you...Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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I didn't know star wars has a day?!
R2D2 πwhen i can think of something profound i will update this.Comment
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A better-late-than-never G'day to all πππ
keno Sorry you're having such a torrid time of late Ken - hope the MND Nurse's visit came with helpful solutions ππ€βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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