Better late than never from me tooππ₯°
Announcement
Collapse
No announcement yet.
Early Bird Club
Collapse
X
-
Originally posted by keno View Postshe got things moving
looking for emergency rest bi
In the meantime, do take care my lovely π€π€πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
- Likes 2
Comment
-
What ho playmates!
Going to a local MND group meet-and-greet today
First opportunity I have had to meet up with anyone.
A drop-in event in the coffee shop of a local garden centre - lovely day for it.
In other news - the WAV demo on Tuesday went well. I have ordered it, and expect delivery in a couple of weeks. Yay!Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
- Likes 3
Comment
-
Afternoon all ππ
WheelsOfSteel Blimey Eddie, you don't hang around, do you! Great news on WAV front, looking forward to hearing all about it.
βββββββdenise Nothing beats drying washing outdoors, plus it stops the house resembling an industrial laundry πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
- Likes 1
Comment
-
Good afternoon folks ππ
JamesW Hard luck on the β½ however I have a sneaky feeling that the π―π―π― π will be victorious π¬ xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
- Likes 1
Comment
-
Howdy Honeybuns
Birds feeding here too. My law is covered in pigeon feathers, I think the buzzard must have nabbed one
Wishing you all a sunny Saturday πHi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
- Likes 1
Comment
Comment