Better late than never from me tooππ₯°
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
It's all funnyComment
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π€ I'm taking that to be emergency respite, maybe? If that's the case, it will give some safe breathing space whilst things are figured out for you Ken.Originally posted by keno View Post
In the meantime, do take care my lovely π€π€πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Morning everyone. Sunny start here. Washing out.
Xxxwhen i can think of something profound i will update this.Comment
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What ho playmates!
Going to a local MND group meet-and-greet today
First opportunity I have had to meet up with anyone.
A drop-in event in the coffee shop of a local garden centre - lovely day for it.
In other news - the WAV demo on Tuesday went well. I have ordered it, and expect delivery in a couple of weeks. Yay!Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Afternoon all ππ
WheelsOfSteel Blimey Eddie, you don't hang around, do you! Great news on WAV front, looking forward to hearing all about it.
βββββββdenise Nothing beats drying washing outdoors, plus it stops the house resembling an industrial laundry πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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still waiting for news from social services
morning allIt's all funnyComment
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Morning everyone. πwhen i can think of something profound i will update this.Comment
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Good afternoon folks ππ
JamesW Hard luck on the β½ however I have a sneaky feeling that the π―π―π― π will be victorious π¬ xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Thanks Ellie but I wouldnβt count your chickens until the game is over ππOriginally posted by Ellie View Post
ππππππFoxes Never Quit πComment
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JamesW 6 π€£π€£π€£πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Lol πOriginally posted by Ellie View Post
β¦.whichever way it goes itβs gonna be a tough game ππFoxes Never Quit πComment
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Good day to allππ Sun is shining, birds are feasting at the bird feeders (starling, blackbird, robin, house sparrow, blue tit and goldfinch) Hoping today is as good a day as it can possibly be for everyone hereπComment
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Howdy Honeybuns
Birds feeding here too. My law is covered in pigeon feathers, I think the buzzard must have nabbed one
Wishing you all a sunny Saturday πHi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning chicks. No feathers here think bird of prey has moved on or pigeons have become more canny.
Think we had rain last night because I have muddy cat paws in my kitchen.
πwhen i can think of something profound i will update this.Comment
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