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Early Bird Club

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    Morning everyone.

    Have the best day possible

    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

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      LindaB thanks. Managed to get to work. Not answering phones now. Only had one tear up today

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        Morning everyone. Very fitting that this club was founded by Matthew. Think most of us have been thinking of him over the last 24hrs.
        x
        Diagnosed May 2021 bulbar onset als.

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          Yep, certainly have.
          Good morning fellow survivors. We march onwards.
          Hi, I'm Eddie.
          Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
          Still walking and talking, and wondering what the future will bring.

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            Yes, love to all xxx
            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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              Morning all. Have the best day possibleโ€ฆwhatever that means for you๐Ÿ’™

              Hospice nurse popping in to see me this afternoon. Sheโ€™s great๐Ÿ’™
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

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                In work, my interpreter for my speech who sits behind me in work had to intervene when a colleague didn't understand when I said full house. So I said it louder. Kept thinking about Matthew all day yesterday. He was I think one of the first to welcome me on the forum. I hope he approves of my jokes.

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                  Me too and very fitting that he started this thread.

                  Good Morning All. ๐Ÿ™
                  Diagnosed 3rd November 2021 Bulbar Onset

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                    hi everyone not exactly early but im here.
                    when i can think of something profound i will update this.

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                      Good afternoon brothers and sisters ๐Ÿ˜˜๐Ÿ˜˜

                      I couldn't bring myself to post here yesterday but today is a new day, it's ๐ŸŒž๐ŸŒž and anyway, it's Matthew's thread, so it's fitting to honour a screen BF by posting again ๐Ÿ˜‰๐Ÿ’–๐Ÿ˜
                      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      โ€‹

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                        An early morning to everyone. I've been up an hour it's not been a good start ๐Ÿ˜ณ
                        when i can think of something profound i will update this.

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                          Morning campersโ€ฆan early start for meโ€ฆearly bird indeed๐Ÿฆœ
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

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                            Hi di hi all. Got two beautiful cats with me on my bed. They always bring a smile to my face

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                              Morning all.
                              Another day, another message of condolence to have to post on the forum.
                              I usually try to lighten the mood around here, but it doesn't feel right lately ๐Ÿ˜•
                              Hi, I'm Eddie.
                              Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                              Still walking and talking, and wondering what the future will bring.

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                                WheelsOfSteel I know re posting with such sadness felt by lots of our forum family.

                                We think we grasp the concept of a terminal illness but logic and emotions are two very different things.
                                Diagnosed May 2021 bulbar onset als.

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