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    Originally posted by denise View Post
    ... i ended up bringing back 9 from Portugal.
    Oh my days, 9 cats!! I'd say the Border Force loved you πŸ₯°πŸ₯°
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      We used pet transport but the paperwork due to Brexit was a nightmare. Many trips to vets and government offices to sort paperwork. So many weird tick boxes.

      Anyone planning to take dogs abroad need to be warned that due to covid, seems to be the excuse for a lot of things, many vets don't have tapeworm treatment. There's also a shortage of flea treatment.

      πŸ’
      when i can think of something profound i will update this.

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        denise You must love those 🐱🐱🐱🐱🐱🐱🐱🐱🐱 😘
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          Good morning world another 24 hours to get through. Made easier today with my first meeting with a Neuro Physiotherapist and my team are playing this evening! πŸ˜πŸ˜πŸ‘πŸ˜ƒxx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            What is a Neuro physiotherapist? I know I could look it up but others will know if you tell me 😊
            when i can think of something profound i will update this.

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              I have absolutely no clue. πŸ€”πŸ˜‚πŸ˜˜πŸ˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                Haha love it. Feels like that sometimes. After a lot of calls and emails last week I finally sat down thinking we'd done when the phone went. Only time I didn't have paper and pen. It was the conveen nurse. For the life of me I couldn't recall what that was. Then I remembered incontinence. Still like to know who got the freebies I requested. I can just see their faces opening the packet. πŸ˜…πŸ˜„πŸ˜ƒ
                when i can think of something profound i will update this.

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                  I was awake more than I was asleep in bed last night - I was πŸ₯ΆπŸ₯Ά (I told you I'd be moaning about it not being warm enough soon enough, contrary hag that I am 😍😍) xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

                  Comment


                    Originally posted by denise View Post
                    What is a Neuro physiotherapist?
                    A physiotherapist who (thankfully) won't treat your muscles and joints as if you've a sports injury - i.e., they specialise in neurological conditions πŸ‘πŸ‘

                    Hope it's of benefit to you Matthew. If carers are there, physio could show them how to do range of motion exercises, stretches etc, and the carers could help you, time permitting (might make her too busy to give you smoochies though 😍😍) 😘😘

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      We are never happy. I was cold not having a cover so settled for a sheet but the quilt is too hot. πŸ™

                      we were listening to Martin beck detective radio drama but I fell asleep missing the end. When I asked what happened he said he didn't know because I was snoring. 😩 fine! And he needs me to roll his fags! πŸ˜‰
                      when i can think of something profound i will update this.

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                        Morning early birds though it's not really that early.

                        funny Stephen going to see a Neuro physiotherapist in September.

                        when i can think of something profound i will update this.

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                          Great sleep, thanks to having the sense to put on my electric blanket for a few 30min periods pre- and post-dawn (and ignoring the fact it's July) πŸ‘πŸ‘ πŸ€—πŸ˜˜
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            Electric blanket 😲I don't believe it
                            when i can think of something profound i will update this.

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                              Yep, you wouldn't believe how cold us folk with MNDs can get... Atrophied muscles can feel icy - if I'm chilly in bed, my wizen arms and back muscles run so cold they ache, that electric blanket solves the issue πŸ‘πŸ‘ xx
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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                                Denise, you'd better batten down the hatches tonight for Storm Evert 🌬🌬 🌧🌧

                                Bet you wish you had an electric blanket too 😍😍 xx
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

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