Announcement

Collapse
No announcement yet.

Early Bird Club

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Ellie

    Sorry to hear that. It must make eye gaze hard.

    I had to Google Katie TaylorπŸ˜…
    Diagnosed 3rd November 2021 Bulbar Onset

    Comment


      Hi ellie
      glad eye is feeling better. If you look like you've been in the ring with Katie Taylor then what does she look like! πŸ€•πŸ€ͺ🀭
      when i can think of something profound i will update this.

      Comment


        LOL denise One of my fingernails fell off this afternoon 😁😁😁 I have low Sats and poor circulation, so nails don't grow properly πŸ₯΄
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

        Comment


          Oh no Ellie. Im so sorry you've had an eye infection... they're miserable at the best of times. Im sorry about your nail too. Rubbish !

          Love and hugs to you xxxπŸ˜˜πŸ’•πŸ€—

          Comment


            Morning everyone. We had a lovely day yesterday. Walk along the pier in the sun then Stephen's favourite a whopper from Burger King.

            πŸ™‚πŸ”πŸŸπŸ₯ƒ
            when i can think of something profound i will update this.

            Comment


              Morning from Yorkshire everyone, hope everyone is as well as possible xx
              Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

              Comment


                Ellie Good luck today in the final, I’m sure you will all be glued to the TV this afternoon πŸ˜€πŸ˜‰πŸ˜˜

                πŸ‰πŸ†πŸ‰πŸ†πŸ‰πŸ†πŸ‰
                Foxes Never Quit πŸ’™

                Comment


                  Today is the first day of the rest of my life and what a beautiful day it is 😘😘
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

                  Comment


                    Good afternoon listeners 😘😘

                    My eyes are still as bloodshot as a vampire's and my eyelids are as swollen as a boxer's, but I'm able to keep them open for longer and longer periods of time, so that's good πŸ‘πŸ‘
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

                    Comment


                      Ellie so glad to hear your eyes are improving.
                      I can only imagine how frustrating it has been for you.
                      Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

                      Comment


                        Ellie you are some tough woman xxx
                        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                        Comment


                          Originally posted by Ellie View Post
                          Today is the first day of the rest of my life and what a beautiful day it is 😘😘
                          Thank you for reminding us to make the most of everyday Ellie , even the tough ones.

                          So sorry your eyes are still sore. Must be so hard for you xxxπŸ˜˜πŸ’•πŸ€—

                          Comment


                            Ellie what on earth is going on? Why are you having these problems? Is it an allergy or something?😘

                            I bought antihistamines and yesterday I couldn't stay awake. Think I bought the wrong ones πŸ™„

                            Morning everyone 😘
                            when i can think of something profound i will update this.

                            Comment


                              Morning everyone xx
                              Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                              Comment


                                Good afternoon folks 😘😘

                                Denise, I started with a stye in one eye, the other eye had FOMO, so decided to join the party with an infection - my mother said it's the badness in me coming out πŸ™„
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

                                Comment

                                Working...
                                X