Announcement

Collapse
No announcement yet.

Early Bird Club

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Morning. We had a storm yesterday. We were watching 'life of pi' and he was in his lifeboat with a tiger in a terrible storm with huge waves and thunder and lightning. Then there was a real big flash of lightning and roll of thunder and I felt that I was there with him. Very atmospheric 🀣⚑⚑
    when i can think of something profound i will update this.

    Comment


      Happy Father's Day to all the qualifiers 😘😘

      Even at my age, I'm still very much a Daddy's Girl πŸ’–
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

      Comment


        I was a daddy's girl but my dad died 1991. πŸ˜₯
        when i can think of something profound i will update this.

        Comment


          I'm a dad, and my boys did me proud yesterday, although they must be wondering how many more Father's Days I have left
          Hi, I'm Eddie.
          Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
          Still walking and talking, and wondering what the future will bring.

          Comment


            Morning everyone.
            It feels chilly this morning. πŸ˜• glad you had a lovely day Eddie.
            😘
            when i can think of something profound i will update this.

            Comment


              Morning everyone. My good friends from Wales and Nottingham coming to see me today x
              Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

              Comment


                That sounds wonderful xxx
                when i can think of something profound i will update this.

                Comment


                  Good afternoon folks 😘😘

                  WheelsOfSteel I always see my dad on Father's Day and each time he leaves my house he tells me we'll celebrate Father's Day together next year - I suspect he crosses his fingers behind his back, but it's nice to hear him say it because it is a poignant day for both of us, for sure.

                  Heather R That sounds lovely - have a great time with your friends.
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

                  Comment


                    Originally posted by Ellie View Post

                    I always see my dad on Father's Day and each time he leaves my house he tells me we'll celebrate Father's Day together next year - I suspect he crosses his fingers behind his back, but it's nice to hear him say it because it is a poignant day for both of us, for sure.
                    πŸ₯ΉπŸ₯ΉπŸ₯ΉπŸ₯°πŸ₯°πŸ₯°
                    Foxes Never Quit πŸ’™

                    Comment


                      Morning everyone. Still think it's chilly first thing. πŸ€”
                      when i can think of something profound i will update this.

                      Comment


                        Summer Solstice sunrise early bird...

                        Uffington White Horse this morning, one of my favourite places to clear my head.
                        You do not have permission to view this gallery.
                        This gallery has 3 photos.
                        2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - "Interim diagnosis limb onset ALS." Confirmed Sep 2022: MND.
                        Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)...

                        Comment


                          Oh yeah. Mid summer, hope the 2nd half is a bit better. 😎
                          when i can think of something profound i will update this.

                          Comment


                            Afternoon folks 😘😘

                            I logged on late as I'm pacing myself, this being the longest day and all πŸ˜‰πŸ˜

                            WheelsOfSteel Great photos Eddie πŸ‘πŸ‘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

                            Comment


                              Originally posted by Arcadian View Post
                              Summer Solstice sunrise early bird...

                              Uffington White Horse this morning, one of my favourite places to clear my head.
                              Stunning 😍

                              Walking was my thing when I had legs that worked. I live not far from the Peaks and it’s one of the things I miss the most when I’m feeling sorry for myself x
                              Foxes Never Quit πŸ’™

                              Comment


                                By the time I've read all the messages I've forgotten which category I'm in. Think its hugs so a big hug to everyone. Suns been up for ages. I'm sure the birds have gone back to bed! πŸ€—πŸ€—πŸ˜˜πŸ€—πŸ€—
                                when i can think of something profound i will update this.

                                Comment

                                Working...
                                X