Originally posted by Heather R
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Ah bless, you reared him well Heather π
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I've been awake long enough to contemplate getting up. Decided on getting up and having a cup of coffee and now cant figure out what to do. Bedroom is like an oven. Seagulls are already up and socialising. George wants his favourite biscuits not the ones in his bowl. πwhen i can think of something profound i will update this.Comment
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Blimey denise you get earlier each day.
Morning all.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning again. My 2nd wake up. π I can see grey clouds. I cant believe we wont have a storm after this run of hot weather.when i can think of something profound i will update this.Comment
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Heading to the airport for home! Missing my daughter and my heating pads, lol π Already booked a massage when Iβm home, and looking forward to switching out the cane for my walker.Comment
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Safe journey angie. You need a rest after all that πwhen i can think of something profound i will update this.Comment
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Morning all 36β°C in my room already! Can't get up as my wheelchair is occupied!! ππ
20220712_085142_mfnr.jpgLast edited by Tabbycat; 12 July 2022, 08:58.Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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I rest my case. Cats make the most uncomfortable position look comfortable.
Watched the women's football last night. A fantastic match
I'm not a football fan but these women are amazing. This is football as I remember it years ago. Anyway George isnt a football fan just a biscuits now fan. Jumps on my lap, head butts me, kneads my lap, bites my arms, jumps up behind me ontop of the chair and hits me over the head with his bushy tail. The feeling of what's the little *** going to do with his nails or teeth makes my hair stand on end. So I leave the football to give him biscuits he doesn't want π‘πΎwhen i can think of something profound i will update this.Comment
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Random thought for the day...
I have been following the decline of my left hand with some interest - as have the Oxford University Hospital team who had me doing tests with it while I was in a MRI scanner last time I was a lab rat for them.
The latest noticeable change is that I no longer have enough control over the fingers to perform Mr Spock's "Vulcan salute".
My left hand is telling me I can no longer "live long and prosper".
Sounds about right
Gotta larf....Last edited by WheelsOfSteel; 12 July 2022, 11:33.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Both of Stephen's hands have gone and the strength from both arms. He still has strength in his legs but hes losing his ability to walk because his ftd wont let him. At least the ftd means hes happy. πwhen i can think of something profound i will update this.Comment
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Morning all. 36 degrees already, Tabbycat! I bet fluffy cats are feeling the heat too. π€π€for your journey Angie.xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Good morning lovelies ππ
Cloudy here but sooo humid and warm that I could be in Borneo - I'll bet even Prince Andrew would sweat π€£π€£π€£
WheelsOfSteel My arms and hands have zero function, my fingers curl under, except for the middle finger on the right hand which sticks out straight - I wonder what that's saying π€βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Oh b*****! That's another typo. Should read 26β°C not 36!! πOriginally posted by Heather R View Post
At least I didn't change anyone's name this time! π€¦ββοΈStarted limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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On my left hand I can't bring my little finger in and on my right I can't bring the index finger in. It makes getting things out of pockets interesting and I can't take change in a shop as it falls through my fingers.Originally posted by WheelsOfSteel View PostThe latest noticeable change is that I no longer have enough control over the fingers to perform Mr Spock's "Vulcan salute".
My left hand is telling me I can no longer "live long and prosper".
Sounds about right
Gotta larf....
Just tried "live long and prosper"....can't do it!
Looks like my fate is sealed.....or is it just the people I meet? π πStarted limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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