Originally posted by Deb
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π€£π€£Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ. -
Ok will get the submarine out and scrape off the barnacles and get a new elastic band for the helicopter. Cant leave poor Maria waiting with her cup holder.
Thinking a few shopping trolleys might be handy for wheeling away useless health professionals.
ππwhen i can think of something profound i will update this.Comment
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Nearly 10am and I'm the first here. Tut tut. I did wake up at 4am but thought it much too early.
England women playing Sri Lanka at rugby. Not that I know the rules but its very exciting.
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when i can think of something profound i will update this.Comment
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Morning troops
Just checking in
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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I've just got dressed. πwhen i can think of something profound i will update this.Comment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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No I'd scare the cats. I had a long white vest like nightdress on. I look like a caterpillar that's swallowed a dog. πwhen i can think of something profound i will update this.Comment
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Console yourself with the thought that if you are reading this you have made it to another day.
Another day where we can all (as Alan Moore put it) "watch the world wind by, and in it's windings find content".
Love to all who are joining me on the journey β€οΈHi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning everyone. I might not be on the same journey but I'm on a journey non the less.
πππ€when i can think of something profound i will update this.Comment
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Morning fellow travellers xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Morning all xxFoxes Never Quit πComment
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A late entrant saying Good Evening ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
βComment
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*Yawn*
Morning all
Off up to Yorkshire today. Fancied a look at the moors and dales for a few days.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Not forgetting the Peaksβ¦.
morning all xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Morning all. Enjoy Yorkshire WheelsOfSteel. I've been looking at places to go. Booked 3 breaks over the next 6 months.Diagnosed May 2021 bulbar onset als.Comment
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