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    Thanks JamesW. I did go back to sleep. Do I take it you are a Luton FC fan?
    when i can think of something profound i will update this.

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      LOL, I think they are Luton town football clubโ€ฆ.. so would be LTFCโ€ฆโ€ฆ mine is the mighty Leicester City ๐Ÿ’ช๐Ÿ’ช๐Ÿ’ช ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ
      Foxes Never Quit ๐Ÿ’™

      Comment


        Oh yeah JamesW . Sorry I missed the c. I don't know much about football. Some years ago, they might still do it, some kind of competition whereby you guessed the scores, bit like doing the pools. So I ended up joining in and I was just imagining the results like they used to do on the radio. Lcfc 5 - Ltfc 4. Thing was I did really well and I was like top of the competition. I was thoroughly embarrassed it was pure guess work. They asked me to join a special competition and I declined and stopped doing it. Put me right off. ๐Ÿ˜ณ
        when i can think of something profound i will update this.

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          Good afternoon all ๐Ÿ˜˜๐Ÿ˜˜

          Well, that didn't last long ๐Ÿ™„ A mere few days ago I was moaning about being a Sweaty Betty, today I'm a bit of a Chilly Millie ๐Ÿ˜ฌ
          โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          โ€‹

          Comment


            I was contemplating putting my socks on last night. Its bucketing here now wellie weather. ๐ŸŒ
            when i can think of something profound i will update this.

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              denise Sorry you had (another) bad night Chick ๐Ÿ˜˜๐Ÿ˜˜
              โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              โ€‹

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                WheelsOfSteel Hope your PEG site is healing well Eddie ๐Ÿ˜˜๐Ÿ˜˜
                โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                โ€‹

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                  Thanks for that Ellie
                  Feels fine now (although still "tight")
                  I was allowed a shower today - bliss!
                  Got a dietician coming to check me over this afternoon.
                  All good ๐Ÿ‘
                  Hi, I'm Eddie.
                  Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                  Still walking and talking, and wondering what the future will bring.

                  Comment


                    Ah that's great Eddie.

                    Originally posted by WheelsOfSteel View Post
                    Got a dietician coming to check me over this afternoon
                    Ask them to double check that the bumper/external fixator/elbow joint iis not too tight to the skin. xx
                    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    โ€‹

                    Comment


                      Ellie what on earth is the bumper/external fixator thing? ๐Ÿค”
                      when i can think of something profound i will update this.

                      Comment


                        Originally posted by denise View Post
                        Ellie what on earth is the bumper/external fixator thing?
                        image.png

                        That plastic bumper disc near the skin which comes in a few different formats.
                        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        โ€‹

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                          Oh that thing. It doesn't fit properly. Its loose.
                          when i can think of something profound i will update this.

                          Comment


                            What ho my fellow fruitcakes.
                            Just a thought - we were watching the Obi Wan Kenobi series last night, and it struck me how most of the Star Wars ships have ramps which would be great for wheelchair access.
                            If the Chinook doesn't work out we could go in the Millennium Falcon
                            Hi, I'm Eddie.
                            Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                            Still walking and talking, and wondering what the future will bring.

                            Comment


                              Millennium falcon has a certain ring to it. Think that's a wonderful idea. WheelsOfSteel need to get a vote from our crew.
                              when i can think of something profound i will update this.

                              Comment


                                Sounds feasible ! !
                                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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