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    Originally posted by Heather R View Post
    New extended bed arrived!
    Woohoo Heather! No more sticking out feet.

    Is the mattress extra long too or have you an insert to go with your old mattress? xx
    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    โ€‹

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      Morning all. I'm normally struggling to be awake by 08:30 but today, I woke up at 06:30! Cool sunny start to the day here ๐ŸŒž

      Heather R hope you had a good night's sleep in your new bed?
      Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.

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        Morning everyone. No sun here just dull and grey.

        Heather Ris obviously still snoring in her new bed. ๐Ÿ™‚
        when i can think of something profound i will update this.

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          Friday morning is a rush, trying to shower and dress and coffee before a weekly zoom at 8, often late. Bed felt luxury being able to stretch out my legs. But had to stretch to push up on the end of the bed to stop myself sliding downward, needing to be on a slope for my breathing. Doesnโ€™t anyone else have this problem? Maybe most people donโ€™t have leg muscle strength when their lungs are so weak???. Donโ€™t know if the end of the new bed looks any sturdier than before! X
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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            Heather R if you use the knee break when you have the head up, it should stop you sliding down the bed.
            Glad if felt comfortable.
            Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.

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              Stephen always manages to slide down the bed no matter what's in the way. I think he has a non-stick bum. ๐ŸŒ๐Ÿ‘
              when i can think of something profound i will update this.

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                Tabbycat thanks yes I am okay when knee break is up (never knew it was called that!) The trouble comes because I like to sleep on my side at night, but still need a bit of a slope. And my legs donโ€™t like the mound, if you see what I mean, so I put it down.
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                  Good Afternoon honeybunnies ๐Ÿ˜˜๐Ÿ˜˜

                  We've had ๐ŸŒž๐ŸŒž all day but it's definitely a few degrees down on yesterday.
                  โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  โ€‹

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                    I cant believe I'm the first here. Lovely sunny start here. Morning everyone.
                    ๐Ÿ˜˜
                    when i can think of something profound i will update this.

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                      Good sunny morning here too x
                      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                        Morning, slightly overcast here, warm, but a lovely refreshing breeze.
                        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.

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                          Hi everyoneโ€ฆ. happy Saturday โ˜บ๏ธโ˜บ๏ธโ˜บ๏ธ
                          Foxes Never Quit ๐Ÿ’™

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                            Good morning (afternoon for all except Maria C and I ๐Ÿซข) Heading to a wedding today, our first since the dreaded pandemic started. Abbyโ€™s super excited since itโ€™s her first time at a wedding ๐Ÿ’’
                            Iโ€™ll be sure to post pics ๐Ÿ‘ฐโ€โ™€๏ธ

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                              AngieCanuck I hope you all have a wonderful time. If you have the sunshine that we do here it will be a lovely day for it and the photos. I can honestly say I haven't been to a wedding since before the millennium xxx
                              Diagnosed June 2022. Confirmed MND which is currently PLS. Limb onset.

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                                Afternoon all ๐Ÿ˜˜๐Ÿ˜˜

                                Glorious ๐ŸŒž๐ŸŒž๐ŸŒž day with me. Still no grass for horses so they're eating winter hay, meaning come winter, between paying for scarce hay and energy bills, I may be draped in a hide, eating dubious lasagne ๐Ÿ˜‰๐Ÿ˜
                                โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                โ€‹

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