AngieCanuck Hope you all have a lovely day. xx
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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π«£ π³Originally posted by Ellie View PostStarted limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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G'day
Just checking in to provide proof of life
Going for a trundle around the Forest of Dean Sculpture Trail today.
Have a sunny Sunday all.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Morning everyone. Not that early for me. Not sure what kind of day we are going to have here. Bit grey and windy. Surprisingly for a bank holiday its been dry. ππ³π€·ββοΈwhen i can think of something profound i will update this.Comment
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Afternoon honeybunnies ππ
This morning was nice and π but now, cloudy and meh.
WheelsOfSteel Oh, that Forest of Dean Sculpture trail brings back lovely memories. We did it twice with the kids pre-MND: once just after Christmas when there was a hoar frost, giving us a Narnia-like experience. Hope you enjoyed it. xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Morning everyone. Suns up might be a nice day.
Think we did the sculpture trail a long time ago. Remember worrying about wild pigs. Not sure if they are into sculpture but who knows.
π€·ββοΈππwhen i can think of something profound i will update this.Comment
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Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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And a very good afternoon to all ππ
Hope your (Bank Holi) day is as good as possible and remember to try make hay while the π shines.
Great photo WheelsOfSteel thanks.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Make hay if you have any!
Morning everyone. Looks like a sunny start here. I cant believe we had bank holiday without any rain.
π€ππ€when i can think of something profound i will update this.Comment
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It wasnβt a bank holiday here in Canada, but we did get some much needed rain last night.
Hugs to everyone. π€π€π€π₯°Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.Comment
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Maria C so even though its bank holiday here it rained somewhere else. πwhen i can think of something profound i will update this.Comment
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Afternoon everyone, I hope we are all enjoying Tuesday? πFoxes Never Quit πComment
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Afternoon honeybunnies ππ
Another ππ day, nice breeze too to get those turbine blades spinning ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Not bad for bank holiday weather, end of school holidays usually getting quite autumnal. Have you got wind power on your estate Elsie?Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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The power of a bank holiday! πOriginally posted by denise View Post
Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.Comment
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