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    AngieCanuck Hope you all have a lovely day. xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      Originally posted by Ellie View Post
      Afternoon all 😘😘

      between paying for scarce hay and energy bills, I may be draped in a hide, eating dubious lasagne
      🫣 😳
      Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.

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        G'day
        Just checking in to provide proof of life
        Going for a trundle around the Forest of Dean Sculpture Trail today.
        Have a sunny Sunday all.
        Hi, I'm Eddie.
        Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
        Still walking and talking, and wondering what the future will bring.

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          Morning everyone. Not that early for me. Not sure what kind of day we are going to have here. Bit grey and windy. Surprisingly for a bank holiday its been dry. πŸŒπŸ˜³πŸ€·β€β™€οΈ
          when i can think of something profound i will update this.

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            Afternoon honeybunnies 😘😘

            This morning was nice and 🌞 but now, cloudy and meh.

            WheelsOfSteel Oh, that Forest of Dean Sculpture trail brings back lovely memories. We did it twice with the kids pre-MND: once just after Christmas when there was a hoar frost, giving us a Narnia-like experience. Hope you enjoyed it. xx
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

            Comment


              Morning everyone. Suns up might be a nice day.

              Think we did the sculpture trail a long time ago. Remember worrying about wild pigs. Not sure if they are into sculpture but who knows.
              πŸ€·β€β™€οΈπŸ˜ŠπŸŒ
              when i can think of something profound i will update this.

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                Morning Munchkins
                Lovely run out to the Forest of Dean yesterday
                20220828_142318.jpg
                Hi, I'm Eddie.
                Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                Still walking and talking, and wondering what the future will bring.

                Comment


                  And a very good afternoon to all 😘😘

                  Hope your (Bank Holi) day is as good as possible and remember to try make hay while the 🌞 shines.

                  Great photo WheelsOfSteel thanks.
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

                  Comment


                    Make hay if you have any!

                    Morning everyone. Looks like a sunny start here. I cant believe we had bank holiday without any rain.

                    πŸ€—πŸ˜˜πŸ€—
                    when i can think of something profound i will update this.

                    Comment


                      It wasn’t a bank holiday here in Canada, but we did get some much needed rain last night.

                      Hugs to everyone. πŸ€—πŸ€—πŸ€—πŸ₯°
                      Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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                        Maria C so even though its bank holiday here it rained somewhere else. πŸ™‚
                        when i can think of something profound i will update this.

                        Comment


                          Afternoon everyone, I hope we are all enjoying Tuesday? πŸ˜…
                          Foxes Never Quit πŸ’™

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                            Afternoon honeybunnies 😘😘

                            Another 🌞🌞 day, nice breeze too to get those turbine blades spinning πŸ‘πŸ‘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

                            Comment


                              Not bad for bank holiday weather, end of school holidays usually getting quite autumnal. Have you got wind power on your estate Elsie?
                              Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                              Comment


                                Originally posted by denise View Post
                                Maria C so even though its bank holiday here it rained somewhere else. πŸ™‚
                                The power of a bank holiday! πŸ˜‰
                                Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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