Morning everyone. Looks like a nice start here. It wasn't cold last night even with a beautiful clear sky.
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Morning everyone. Empty house again this morning xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Morning...just.
Technician coming to replace the broken part on my T-I-S recliner today....at last.
The helpful text message telling me when they will be here says, between 8am and 6.30pm....I think I could have worked that out for myself! π€¦
At least they're coming...I've missed being able to raise my feet up.
Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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Good afternoon fellow season-watchers ππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Tabbycat Hope that technician fixed your chair and you're relaxing with your feet up π€π€βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Hopefully you don't mean that no carers turned up π€ xxOriginally posted by Heather R View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie oh no, didnβt mean that, I am so lucky to have reliable and lovely carers. I meant without the happy babble of my granddaughter as she opens every drawer and looks in all the bins and thoroughly ransacks the place. XDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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All fixed, bliss. I have missed my chairOriginally posted by Ellie View PostStarted limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive πΊ.Comment
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Morning everyone. I've been awake for ages. π₯Ίwhen i can think of something profound i will update this.Comment
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Hope youβve had some sleep since then Denise! I shall try and savour maybe the last bit of warm weather xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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There's an alarm in the kitchen for carbon monoxide and it has a fan attached to it. The fan drives me nuts so I turn it off by hitting it with a broom. When the batteries run down it starts bleeping and usually when I turn it back on it stops. 2am this morning it started bleeping and it's still bleeping. I feel like hitting it with something harder than a broom. π±when i can think of something profound i will update this.Comment
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I stabbed it with a knife and its stopped. That'll teach it. πwhen i can think of something profound i will update this.Comment
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Afternoon Lovelies ππ
denise Hope you've replaced the batteries in the CO alarm - can you reach it? xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Why is it always the middle of the night that this happens?? πOriginally posted by denise View PostFoxes Never Quit πComment
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I have no idea. Perhaps because it's the witching hour. π€·ββοΈwhen i can think of something profound i will update this.Comment
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