Good morning fellow adventurers. Suddenly it's Saturday! ππ€ππxx
Announcement
Collapse
No announcement yet.
Early Bird Club
Collapse
X
-
Morning I was awake at 3am...but did go back to sleep....but I think I still qualify for the Early Bird Club. π¦π
Saturday...have a good oneπInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
Comment
-
Good morning all, and I hope that you all have a good day.
Iβve been up since 7.20 after a disturbed night so Iβm tired. Iβm dressed, had breakfast and waiting for 12 when my daughter is coming to take me up to Settle. Steve left about 8am as heβs teaching Irish fiddle at the festival. Me and my daughter are going to an afternoon concert in The Victoria Hall, and probably a wander around the village. I think that Steve will be busking with our concertina playing (and singing) friend.
Love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
- Likes 2
Comment
-
Thanks Linda, yes itβs the first day out for a couple of weeks so looking forward to it. The weather is supposed too be good all day which is lucky xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
- Likes 1
Comment
-
Morning all....that's lovely matthew55 ππ
Hope everyone has a great day....keep coolπππππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
- Likes 1
Comment
-
A late good morning everyone. Lovely comment Mathew β€οΈ
We weβre both wiped out after getting home late from the last night of the Settle Folk Gathering. A smashing day had. 2 great concerts and an hour sitting in the Victoria Hall back garden with an English music session going on.
I didnβt get into bed until 1.30 am. Was awake 6, went to the loo and took 2 more paracetamol then couldnβt get back to sleep until about 7.30, awake 8, 8.30 and got up at 9. Steve didnβt get up until 10.30.
Love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
- Likes 2
Comment
-
Originally posted by Lynne K View PostI didnβt get into bed until 1.30 am.
Happy ππππ Monday everybody. I'm just waiting for my gruel, oops, I mean my lunch (food isn't this place's selling point but I've my pump feed to look forward to later π) ππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
Comment
-
Ellie, the last concert was 7 to 10.30, a natter to friends and then the drive home. A road closure so a bit longer than the usual hour and a quarter. I take ages getting ready for bed and hence my lateness into bed. But hey ho, worth it for a musical weekend. Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
- Likes 2
Comment
-
K Youre a rock chick ...go girl. Things have to be worth all the effort and it sounds like your πΌ π΅ πΆ was.yea !
Ellie Hope your stay in respite is going well and that you're not missing your homecomforts too much. Xx
@Matthew Lovely sentiment and lots of love to you too.
I can't stop using this @ thingy xxx
- Likes 2
Comment
Comment