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    Good morning fellow adventurers. Suddenly it's Saturday! πŸ˜πŸ€—πŸ˜˜πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      Morning I was awake at 3am...but did go back to sleep....but I think I still qualify for the Early Bird Club. 🐦🌝
      Saturday...have a good one😘
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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        Good morning all, and I hope that you all have a good day.

        I’ve been up since 7.20 after a disturbed night so I’m tired. I’m dressed, had breakfast and waiting for 12 when my daughter is coming to take me up to Settle. Steve left about 8am as he’s teaching Irish fiddle at the festival. Me and my daughter are going to an afternoon concert in The Victoria Hall, and probably a wander around the village. I think that Steve will be busking with our concertina playing (and singing) friend.
        Love Lynne x
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

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          Lynne K what a fabulous day you have ahead of you πŸ’–
          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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            Thanks Linda, yes it’s the first day out for a couple of weeks so looking forward to it. The weather is supposed too be good all day which is lucky x
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

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              Morning all have a great day πŸ˜„πŸ˜€πŸ€—πŸ‘xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                Morning everyone x

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                  Good morning you wonderful People, I am so happy you are in my life. πŸ€—πŸ˜„πŸ˜˜πŸ˜xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    Morning all....that's lovely matthew55 πŸ‘πŸ˜‰
                    Hope everyone has a great day....keep cool🌞🌞🌞🌞🌞
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                      Good morning everyone xx

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                        A late good morning everyone. Lovely comment Mathew ❀️

                        We we’re both wiped out after getting home late from the last night of the Settle Folk Gathering. A smashing day had. 2 great concerts and an hour sitting in the Victoria Hall back garden with an English music session going on.

                        I didn’t get into bed until 1.30 am. Was awake 6, went to the loo and took 2 more paracetamol then couldn’t get back to sleep until about 7.30, awake 8, 8.30 and got up at 9. Steve didn’t get up until 10.30.

                        Love Lynne x
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

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                          I found the older I got the hangovers got longer. πŸ˜‰πŸ˜πŸ€—πŸ˜xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            Originally posted by Lynne K View Post
                            I didn’t get into bed until 1.30 am.
                            Ooh, you party animal Lynne πŸ˜‰πŸ˜‚πŸ˜‚ And why not!

                            Happy 🌞🌞🌞🌞 Monday everybody. I'm just waiting for my gruel, oops, I mean my lunch (food isn't this place's selling point but I've my pump feed to look forward to later 😏) 😘😘

                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              Ellie, the last concert was 7 to 10.30, a natter to friends and then the drive home. A road closure so a bit longer than the usual hour and a quarter. I take ages getting ready for bed and hence my lateness into bed. But hey ho, worth it for a musical weekend. Lynne x
                              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                              I'm staying positive and taking each day as it comes.

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                                K Youre a rock chick ...go girl. Things have to be worth all the effort and it sounds like your 🎼 🎡 🎢 was.yea !

                                Ellie Hope your stay in respite is going well and that you're not missing your homecomforts too much. Xx

                                @Matthew Lovely sentiment and lots of love to you too.

                                I can't stop using this @ thingy xxx

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