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    Glad you managed another ~2hrs sleep - you need to be on top form for the festival ๐Ÿ˜๐Ÿ˜

    Originally posted by Tabbycat View Post
    today my left foot has migrated all the way to the edge of the bed. โ€‹โ€‹โ€‹โ€‹โ€‹
    Do your legs dance in bed, Tabs, restless leg syndrome style, or was the left foot just trying to escape?

    No sign of the big marshmallow heading your way? xx
    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    โ€‹

    Comment


      Ellie I have the marshmallow mattress, it is divine...I had a little delay as the first one sent had a fault, I must have forgotten to post that it had arrived, in all the excitement.

      The problem with my legs is the feet roll out & the heel becomes uncomfortable, so I extend my leg to lift the heel. After doing this a number of times my feet move further and further towards each side of the bed and I lack adductor muscles so can't bring them back together.

      I have a Repose Wedge which worked very well to stop my heels hurting, but my cat punctured it 2 days ago when it didn't get "tidied" away in the day it should have been!

      Looking forward to the festival, see you there ๐Ÿ˜„ x
      Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.

      Comment


        Tabbycat Great news re mattress (just hope the ๐Ÿฑโ€‹ doesn't sink its teeth/claws into that too ๐Ÿ˜‰) xx
        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        โ€‹

        Comment


          Glad you got back to sleep Tabbycat. What's the official name of the marshmallow mattress? My dad has finally agreed to accept a profiling bed (although quite possibly just to stop everyone from going on about it). I thought if I could make it as enticing as possible he may even use it!

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            JamesW Sorry for your ๐Ÿˆ loss, Sweetie - it was a good match though.

            I've butterflies in my stomach already for next Saturday ๐Ÿ˜ฌ ๐Ÿ˜˜๐Ÿ˜˜
            โ€‹
            โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            โ€‹

            Comment


              Originally posted by Ellie View Post
              JamesW Sorry for your ๐Ÿˆ loss, Sweetie - it was a good match though.

              I've butterflies in my stomach already for next Saturday ๐Ÿ˜ฌ ๐Ÿ˜˜๐Ÿ˜˜
              โ€‹
              Mehโ€ฆ.we didnโ€™t seem to want to win as much as they didโ€ฆ.. Scotland are a good side these days and no pushovers ๐Ÿ‘๐Ÿ‘๐Ÿ‘

              It will be a good game against France next weekend xx
              Foxes Never Quit ๐Ÿ’™

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                At least Leicester had a good win today JamesW. โšฝ๏ธ

                Bit of a crunch game for Leeds tomorrow. ๐Ÿคž( but at least we've still got Jack ๐Ÿคฃ) x

                Comment


                  Originally posted by Deb View Post
                  At least Leicester had a good win today JamesW. โšฝ๏ธ

                  Bit of a crunch game for Leeds tomorrow. ๐Ÿคž( but at least we've still got Jack ๐Ÿคฃ) x
                  Yepโ€ฆ awesome win today against our local rivals ๐Ÿ˜€๐Ÿ˜€๐Ÿ˜€๐Ÿ˜€

                  Good luck tomorrow ๐Ÿคž
                  Foxes Never Quit ๐Ÿ’™

                  Comment


                    Originally posted by Claireflo View Post
                    Glad you got back to sleep Tabbycat. What's the official name of the marshmallow mattress? My dad has finally agreed to accept a profiling bed (although quite possibly just to stop everyone from going on about it). I thought if I could make it as enticing as possible he may even use it!
                    Sorry for the delay getting back to you Claireflo

                    I have an Invacare Soft Form Premier Active 2 hybrid mattress.

                    The Invacare Softform Premier Active 2 RX is equipped with excellent features to offer health professionals a dynamic therapeutic support surface with additional levels of pressure relief. It comes with the Active 2 RX Control Unit, which allows users to deliver optimal client support at the touch of a button via active alternating air cells. These alternating air cells work together with the clinically proven interface of the Softform Premier Foam mattress to assist in the prevention of pressure ulcers, thus allowing adequate support. Softform Premier Active 2 RX static surface can be easily โ€˜stepped upโ€™ with the addition of the new control unit, further assisting in the treatment of severe pressure ulcers. This softform mattress combines the pressure redistributing qualities of specially cut foam castellations at the patient interface, with air cells beneath which can be inflated as required to provide active therapy. This construction ensures the patient is always supported by enveloping supportive high specification foam, whether the control unit (powering the air cells) is switched on or off. The comfortable high specification foam provides effective pressure redistribution and ensures comfort is maintained at all times. Key features of Invacareโ€™s Softform Premier Active 2: Static Foam Surface: This allows the patient to remain on a โ€˜Very High Riskโ€™ pressure reducing surface, minimising the risk of pressure damage. Digital Control Unit: The intuitive user interface makes it easy to set up and use. Modular Construction: All components are easily and economically replaceable, contributing to a lower cost of ownership. Self-Adjusting System: Needs no pressure adjustments, the Active 2RX control unit deliver the optimum pressure. A complete patient-centric solution: This feature helps to provide active therapy. Reduce Shear Forces: It features an innovative glide mechanism that significantly reduces shear forces when used with an electric profiling bed.

                    Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.

                    Comment


                      Thanks Tabbycat, I really appreciate that.

                      Comment


                        Originally posted by Tabbycat View Post
                        I have an Invacare Soft Form Premier Active 2 hybrid mattress.
                        Glad you find that mattress comfortable Tabbycat . My hospice switched from full air mattresses to hybrid mattresses and the staff find them very reliable.

                        My skin-and-bone elbows had pressure marks on them after only one night on that mattress but I have zero movement, so need to lie directly on air ๐Ÿ‘ธ But it's a perfect example of 'everyone is different' and not to give up if a piece of equipment isn't right for you xx

                        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        โ€‹

                        Comment


                          Originally posted by Ellie View Post

                          My skin-and-bone elbows had pressure marks on them after only one night on that mattress but I have zero movement, so need to lie directly on air ๐Ÿ‘ธ
                          It's also very reassuring to know that there is another option available, should this one become unsuitable for me xx
                          Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.

                          Comment


                            9am and just getting up, technically early bird as I was awake at 2am.
                            Busy day yesterday trying to sort a PIP mandatory reconsideration, then an hour with local anaesthetic having 2 suspected basal cell carcinoma removed.
                            One was under my eye, so the consultant cut and stitched in a way to try and minimise risk to future non-verbal communication options.

                            Was a novelty to spend a bit of time in a hospital on something that will potentially be getting better...
                            2020: odd symptoms. Nov 2021: Hand atrophy.. Mar 2022: Second arm atrophy - Confirmed Apr 2022: MND.
                            Also Crohn's Disease from 2005ish. (Hi, I'm Dan in Cheshire)...

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                              I was up earlier today than usual, power has been turned off this morning as they do work on the extension. Had to get out of my bed whilst I still had power! ๐Ÿคžit all goes to plan.
                              Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive ๐Ÿ˜บ.

                              Comment


                                Hope you're having a less stressful day today.

                                Originally posted by Arcadian View Post
                                ... the consultant cut and stitched in a way to try and minimise risk to future non-verbal communication options.
                                How thoughtful - out of curiousity, to preserve what function(s)? xx
                                โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                โ€‹

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