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    Plymouth a city? Large town maybe. πŸ˜‰πŸ˜πŸ€—πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      Me - I had a fabulous sleep πŸ‘πŸ‘πŸ‘

      Special thoughts to those for whom sleep is a trial 😘😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        I'm sleeping well ...even with NIV all night nowπŸ‘πŸ‘πŸ˜΄
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          Originally posted by LindaB View Post
          I'm sleeping well ...even with NIV all night now
          Glad NIV worked out well for you Linda 😘

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            Good morning you wonderful acheivers. You'll be surprised what you can do when you put your mind to it. Our brain is one of the few things we are allowed to keep. πŸ˜‰πŸ˜πŸ€—πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              Good morning all x

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                Good morning you incredible people. As the English Bard said 'Whether 'tis nobler in the mind to suffer. The slings and arrows of outrageous fortune, Or to take arms against a sea of troubles, And by opposing end them?'
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  Morning all. i am half in half out of the wide awake club lol. i was sleeping like a baby until we decided to hire a motorhome. the mattress is like sleeping on concrete. might sleep on the grass outside tonight as i am sure it would be more comfortable.
                  Diagnosed May 2021 bulbar onset als.

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                    In hospital recently I had to ask for an air mattress. I'm all bone. πŸ˜‰πŸ˜€πŸ˜˜πŸ˜xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      Oh shelly I remember caravan mattresses and camping beds that we thought would be great before setting off and by night 2 fancied booking into a hotel because we couldn't sleep.

                      Morning everyone terrible weather here. 😘
                      when i can think of something profound i will update this.

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                        denise i now know exactly what you mean. its our last night and i think i am going to book in a hotel tonight. Matthew i have heard great things about the air mattress and am looking forward to it lots.
                        Diagnosed May 2021 bulbar onset als.

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                          Good morning everybody. I wish I could out to panic-buy petrol but as I can't I'm going to panic-telly-watch instead. xx

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                            Morning all. 8am I got out of bed today which is later than most days. It was a better night that I had in my own bed. With my slippy sheets and grab rail each side it was much easier to turn over than in the holiday one. I’m all showered and dressed.

                            Shelley I feel for you. Hard beds are hell. Good luck for a good nights sleep wherever you lay your head tonight.
                            Love Lynne x
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.

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                              Ugh shelly21 I feel for you hun - here's to a decent night tonight 🀞🀞

                              I have an alternating air mattress and love it, though it can be hit and miss whether you're given a good one or not.

                              Chilly night, chillier morning, beautiful day - thank goodness for electric blankets πŸ‘πŸ‘πŸ€—πŸ€—πŸ˜˜
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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                                Good morning good people. We are the Champions! Never forget it. πŸ˜πŸ€—πŸ‘πŸ˜xx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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