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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
Good morning you professional adapters in this cruel game that is our life. If something seems too difficult we are always here to offer advice, help and love. ππ§ππ€xx
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx
Good morning all. Thank you LindaB. I think Dorothy Parker takes lot of beating for wit. There's one of hers goes something like: guns are dangerous, gas makes you sick ... You might as well live ..
Keno, 4.30 you are certainly a very early bird. I woke 5.25, took 2 paracetamol, went to the loo, got back into bed and then waited for more sleep. About an hour later dropped off then got up 2 minutes to 8.
MND Smart st Salford today 2pm so wearing easy off and on clothes again.
Lynne x
ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
Yeah, but there is special and there is special... π I don't want to be the former but I'm starting to wonder about myself these days π₯΄ππππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV. β
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