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    Ellie You are simply one of a kind. Your husband is the luckiest man on the planet. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      Oh wow. I thought it would bung up. Says a lot about my porridge 😘
      when i can think of something profound i will update this.

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        It is well blended and diluted, otherwise not a hope...
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          I didn't realise you still blended food. I thought once onto the peg food that would be it. Shows what I know. Have to say, not that I know what my stomach is thinking but it doesn't have a problem letting me know it's not happy, think it would be requesting something to get it's teeth into. If it had any! πŸ˜‚
          when i can think of something profound i will update this.

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            Good morning fearless adventurers, the challenges we conquer daily would leave Indiana Jones scratching his head. βœŒοΈπŸ˜πŸ‘πŸ˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              Good morning everyone xx

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                Good morning all
                It's all funny

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                  Morning all....πŸ˜‰βœŠπŸ˜¬
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                    Good morning all x
                    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                    I'm staying positive and taking each day as it comes.

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                      Originally posted by denise View Post
                      I didn't realise you still blended food. I thought once onto the peg food that would be it.
                      Mix and match.

                      I like to increase my protein, so take diluted unflavoured, high protein, 0% fat Greek yogurt or quark through the PEG to - great benefits with minimal calories (for Buddha bellies 🀣) xx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        Good morning. When all seems lost remember we are here to help you find it. We are in this together until the end. πŸ‘πŸ€—πŸ˜˜πŸ˜xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          Matthew does that include figuring out where my loo is? No loo no bio bidet!

                          Seems to me online buying isnt as good as we think. Actually buying it and taking it home seems the way to go. 😫
                          when i can think of something profound i will update this.

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                            Good Morning all xx

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                              I am soooo late today, or perhaps soooo early for tomorrow πŸ€”

                              Either way, at least I'm here with my homies 😏😘😘
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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                                Late or Early you're always more than welcome πŸ˜πŸ€—πŸ˜˜πŸ˜xx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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