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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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We used to build a huge bonfire and up the road to us the same. It was a competition. Then we had to start guarding it because they would set fire to ours just before bonfire night.
Lots of fireworks here last night. Big display on the seafront. I watched it from my kitchen door.when i can think of something profound i will update this.Comment
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denise Im envious of people living near the seaππ MorningπInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good morning
Sitting in front of a blow heater while plumbers fit new radsIt's all funnyComment
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Good morning Keno. I hope that youβre toasty warm now xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Hopefully rad is in by now Ken and you're toasty.Originally posted by keno View Post
Paddy's a bit too big to sit on your lap and keep you warm, or is he... πππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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keno what breed is he? looks lovely but think he'd take up most of the armchair.
i do miss my dogs. this is the only time in my life i havent got any.
xxxxxxxwhen i can think of something profound i will update this.Comment
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Beagle, I think xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Good morning and a warm welcome to the final Marathon brought to us by the World. We gather at the start surrounded by our friends and family in a variety of walking aids, and wheelchairs. This unique race has no set length, and every competitor has a different finish line. The important thing is we do it together to whatever end we face. Stay Strong and Happy. πππββοΈπΆββοΈπΆββοΈπxx
ββββββBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Good mornigIt's all funnyComment
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Morning everyone. Suns out. Stephen's singing to ABBA - not so good π€.
Always wanted a beagle. Had a lot of Jack Russell cross. Always had 2 or 3 dogs at the same time over 50 years.
π€π₯°ππwhen i can think of something profound i will update this.Comment
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Morning all....Sunday all day...πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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