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    Good morning all. I looking outside, think it's still morning

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      Yes I can imagine with my Jack Russell's and westie cross I had to predict what they would do before they did it. Failing that being able to run faster than them. Or make out they weren't mine.πŸ™„
      when i can think of something profound i will update this.

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        Originally posted by Gordan1111 View Post
        Good morning all. I looking outside, think it's still morning
        Yep.still morningπŸ‘πŸ»πŸŒž
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          Good Morning from 🌞🌞🌞 Turks & Caicos where it's breakfast time πŸ₯β˜• 😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

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            Good morning
            Shopping day today
            It's all funny

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              Morning all. keno shopping...enjoyπŸ€—
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                Good morning my fellow cave divers. What is MND/ASL if not a deep, dark place, unknown and uncontrollable? But do not fear as we are your guides, and we have experience of parts of this cave. What awaits us at the very end remains a mystery that we will discover together. Stay with us and stay Strong. πŸ’ͺπŸ˜πŸ€—πŸ˜xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  Originally posted by LindaB View Post
                  Morning all. keno shopping...enjoyπŸ€—
                  stocked up cake and trifle
                  funny enough since getting mnd my cholesterol as gone down and blood sugar has gone from pre-diabetic to back in the normal range
                  maybe i was not eating enough cake
                  It's all funny

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                    Morning all. Never done cave diving but Enid Blyton taught me the difference between stalagmites and stalactites. So wasn't completely wasted childhood
                    Last edited by Gordan1111; 8 November 2021, 11:32.

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                      It's not long until sunset but I'll still say a big Hi! to one and all - I promise to try to make tomorrow morning 😳 xxx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        Have you nipped off abroad ellie or are you just pretending?

                        Keno you can never have enough cake πŸ˜‰

                        didnt know enid blyton did cave diving but then again why not. Perhaps we could do that in the book club πŸ™‚

                        late today. Pre OP hospital trip.
                        when i can think of something profound i will update this.

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                          Originally posted by denise View Post
                          Have you nipped off abroad ellie or are you just pretending?
                          As if I could keep quiet about something like that 😍😍 given that I don't have one of Richard's 'Flying Wheelchairs', it's purely wishful thinking
                          😏

                          Originally posted by denise View Post
                          late today. Pre OP hospital trip.
                          Hope all went to plan xx

                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            Not bad other than Stephen trying to go walkabout. I've warned them that he will be off if they don't keep him entertained next week. They asked if I wanted to stay with him. No I said I've got breast screening. I was looking forward to 4 hours reading and visiting m,&,s foodhall. They had said I couldn't attend with him. That was a close call.

                            πŸ™‚
                            when i can think of something profound i will update this.

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                              Originally posted by denise View Post
                              They asked if I wanted to stay with him. No I said I've got breast screening. ... They had said I couldn't attend with him.
                              Funny how they're quick to change the rules when it suits them πŸ™„

                              Stay out of trouble for the week now, won't you πŸ˜‰πŸ˜˜
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

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                                Another day dawns. Oh no, it's still dark.
                                Good morning
                                It's all funny

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