Good morning all. I looking outside, think it's still morning 
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Yes I can imagine with my Jack Russell's and westie cross I had to predict what they would do before they did it. Failing that being able to run faster than them. Or make out they weren't mine.πwhen i can think of something profound i will update this.Comment
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Yep.still morningππ»πOriginally posted by Gordan1111 View PostGood morning all. I looking outside, think it's still morningInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good Morning from πππ Turks & Caicos where it's breakfast time π₯β ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Good morning
Shopping day todayIt's all funnyComment
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Morning all. keno shopping...enjoyπ€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Good morning my fellow cave divers. What is MND/ASL if not a deep, dark place, unknown and uncontrollable? But do not fear as we are your guides, and we have experience of parts of this cave. What awaits us at the very end remains a mystery that we will discover together. Stay with us and stay Strong. πͺππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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stocked up cake and trifleOriginally posted by LindaB View Post
funny enough since getting mnd my cholesterol as gone down and blood sugar has gone from pre-diabetic to back in the normal range
maybe i was not eating enough cake
It's all funnyComment
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Morning all. Never done cave diving but Enid Blyton taught me the difference between stalagmites and stalactites. So wasn't completely wasted childhoodLast edited by Gordan1111; 8 November 2021, 10:32.Comment
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It's not long until sunset but I'll still say a big Hi! to one and all - I promise to try to make tomorrow morning π³ xxx
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Have you nipped off abroad ellie or are you just pretending?
Keno you can never have enough cake π
didnt know enid blyton did cave diving but then again why not. Perhaps we could do that in the book club π
late today. Pre OP hospital trip.when i can think of something profound i will update this.Comment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Not bad other than Stephen trying to go walkabout. I've warned them that he will be off if they don't keep him entertained next week. They asked if I wanted to stay with him. No I said I've got breast screening. I was looking forward to 4 hours reading and visiting m,&,s foodhall. They had said I couldn't attend with him. That was a close call.
πwhen i can think of something profound i will update this.Comment
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Funny how they're quick to change the rules when it suits them πOriginally posted by denise View Post
Stay out of trouble for the week now, won't you ππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Another day dawns. Oh no, it's still dark.
Good morningIt's all funnyComment
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