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    #1051
    Morning everyone. Funny Matthew I was up that time trying to get George indoors.

    Yes we will be good and stay indoors. I don't think it will make much difference to us not like we go out much. I was really looking forward to UK supermarkets but by the time I've walked past vast areas of loo rolls (how much choice do we need?) Cereal, cleaning products, choice is nice but seriously. My brain has turned off and I've missed what I went for. So online shopping gets my vote.

    Quite liked listening to the radio over looking the sea and singing at the top of our voices. Suppose we could still do that. πŸ€”
    when i can think of something profound i will update this.

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      #1052
      Patient transport put Stephen in a wheelchair, I dont mean they ran him over or anything like that, just for his own comfort. So I get to push him round for the first time. I only took out a door and a few chairs which had the people in the waiting room cheering. NHS staff informed me I'm well on my way to getting my license. πŸ˜‰
      when i can think of something profound i will update this.

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        #1053
        keno you were an early bird!

        I had a disturbed night but went back to sleep eventually...then slept longer than plannedπŸ™„πŸ˜΄

        ​​​​​​​I agree denise I'm happy online grocery shoppingπŸ˜‰πŸ˜˜
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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          #1054
          Good morning Campers - made it with lots of time to spare 😜😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
          ​
          • Likes 1

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            #1055
            matthew55 missing on paradeπŸ€·πŸΌβ€β™€οΈ
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              #1056
              Sorry but I'm having a bad day. Hopefully back to full strength tomorrow πŸ€—πŸ˜•πŸ˜˜πŸ˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
              • Likes 2

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                #1057
                Take care matthew55 rest well and you'll be back on form tomorrowπŸ™
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                  #1058
                  matthew55 Don't apologise mate, ready when you are.

                  πŸ€—πŸ˜˜
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                  ​
                  • Likes 1

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                    #1059
                    Take care mate xx
                    • Likes 1

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                      #1060
                      Yes take care of yourself Matthew xx
                      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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                        #1061
                        You never ever have to say sorry for a bad day on here matthew55 .. Love and big hugs πŸ€— to you,

                        I've everything crossed that tomorrow is a better day for you xx πŸ˜˜πŸ€—πŸ€—πŸ€—β€
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                          #1062
                          Good morning all
                          It's all funny
                          • Likes 1

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                            #1063
                            Morning all...have the best dayπŸ˜‰
                            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​
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                              #1064
                              matthew55 here's hoping today is a better day for you...take care πŸ™
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                                #1065
                                Matthew do hope you’re feeling a bit better today xxx
                                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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