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    Lady of the Manor our Ellie πŸ˜‰πŸ˜πŸ€—πŸ˜˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      Yes can just see 4 legs and a cat slinking around

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        Good morning
        It's all funny

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          Morning everyone. Keno see you're up early again. What did you do before to get up so early,? I was awake early again πŸ₯°πŸ˜˜πŸ€—
          when i can think of something profound i will update this.

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            Morning one & all 🌞🌞🌞🌞
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              Originally posted by denise View Post
              Morning everyone. Keno see you're up early again. What did you do before to get up so early,? I was awake early again πŸ₯°πŸ˜˜πŸ€—
              Worked at Rolls Royce in Crewe 12 miles away so always got up, had breakfast before driving into work.
              It's all funny

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                Good morning all. Up at 7.00 this a.m. I might go back to bed soon, tired out already!
                Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                  Hi keno So rolls Royce cars or engines. Sorry my being thick. Do they still do a rolla? I suppose its owned by Ford or China?

                  Dont know why I keep waking up certainly ain't work related. πŸ™
                  when i can think of something profound i will update this.

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                    Almost sunset, so I guess it's a Good Evening 😳

                    Hope everyone's keeping warm πŸ₯ΆπŸ₯Ά xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      I have the heating on even though the sun is shining πŸ’™
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                        Good morning
                        It's all funny

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                          Morning to all the early birds 😎
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                            Good morning my friends. It saddens me when people on here turn on others. Being together is how we can beat this mentally, and any win is a Victory. ✌️😁β™₯️😍xx
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                              Great to see Kevin Sinfield running for MND....think the site crashed for a while. πŸ’šπŸ’šπŸ’š
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                                Hi everyone beautiful here. Been out in my t-shirt its lovely here. Making the most rain tomorrow xxx
                                when i can think of something profound i will update this.

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