Lady of the Manor our Ellie πππ€πxx
-
Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
Yes can just see 4 legs and a cat slinking aroundComment
-
Good morningIt's all funnyComment
-
Morning everyone. Keno see you're up early again. What did you do before to get up so early,? I was awake early again π₯°ππ€when i can think of something profound i will update this.Comment
-
Morning one & all ππππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
-
Worked at Rolls Royce in Crewe 12 miles away so always got up, had breakfast before driving into work.Originally posted by denise View PostIt's all funnyComment
-
Good morning all. Up at 7.00 this a.m. I might go back to bed soon, tired out already!
Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
-
Hi keno So rolls Royce cars or engines. Sorry my being thick. Do they still do a rolla? I suppose its owned by Ford or China?
Dont know why I keep waking up certainly ain't work related. πwhen i can think of something profound i will update this.Comment
-
Almost sunset, so I guess it's a Good Evening π³
Hope everyone's keeping warm π₯Άπ₯Ά xxβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
-
I have the heating on even though the sun is shining πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
-
Good morningIt's all funnyComment
-
Morning to all the early birds πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
-
Good morning my friends. It saddens me when people on here turn on others. Being together is how we can beat this mentally, and any win is a Victory. βοΈπβ₯οΈπxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
-
Great to see Kevin Sinfield running for MND....think the site crashed for a while. πππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
-
Hi everyone beautiful here. Been out in my t-shirt its lovely here. Making the most rain tomorrow xxxwhen i can think of something profound i will update this.Comment
Comment