Good morning / afternoon all xx
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Hey up how are you diddling
Morning all
Just got out of the shower so need a rest now.It's all funnyComment
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Morning everyone. 🥰😘🥰when i can think of something profound i will update this.Comment
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Good morning all....have the best day possible. 😘Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Good morning one more day to endure. It'll be easy with all of us together. Family forever. 👨👩👦❤️🤗😁xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Tell me about it...I use to work out in a gym...now having a shower is exhausting...and I use a shower chair...Originally posted by keno View Post
I'm grateful though that I can still manage to do this....for how long who knows😉🤔😁🤷🏼♀️Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Shower for me this morning too but I think my partner is more exhausted than me!Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.Comment
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Glad we're all sweet smelling today 😍😍
I woke up to the first ground frost of the season and the birds are busy at the feeders 😘😘Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Good morning allIt's all funnyComment
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Morning all... keno you're definitely an early bird🌞🌞😉Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Good morning you brave hearts, the road stretches out, no one knows how far it goes. But stick with us and we will show you the best route. We're your emotional GPS, switch us on. 📱🤗😁🤩xxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xxComment
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Morning all. I too shower independently with a shower chair Linda but not for much longer I think, I’m sitting on my RR chair now waiting for my porridge, fruit and maple syrup, my regular breakfast xxLast edited by Lynne K; 25 November 2021, 10:48.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Lynne K your breakfast sounds lovely and very healthy. 😘Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Always have been LindaOriginally posted by LindaB View Post
Just got back from hospital and got to go again tomorrow.
It's all funnyComment
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keno hospital visits incredibly draining eh? Hope you're ok👍🏻😉Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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