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    #1306
    Morning allπŸ€“
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      #1307
      Morning Linda and all xx
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.
      • Likes 1

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        #1308
        Morning everyone. xx
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
        • Likes 1

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          #1309
          Morning all. I'm actually going out today ! Going to meet my local MND group for the first time at lunchtime
          Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
          • Likes 2

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            #1310
            Enjoy Rosemary xx
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.
            • Likes 2

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              #1311
              Lynne K Thanks Lynne xx
              Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                #1312
                Originally posted by Rosemary6NT View Post
                Morning all. I'm actually going out today ! Going to meet my local MND group for the first time at lunchtime
                Hope they were as nice as us lot, Rosemary 😍😘
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                ​
                • Likes 1

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                  #1313
                  G'day one and all 😘😘

                  A special shout out to anyone who feels they'd be intruding if they popped in to say a G'day, Ciao, Salut, Hiya or a Kon'nichiwa; there's plenty of room, the fire is lit, kettle's on and the door is always open - it even has a ramp, so come on in whenever suits, no need to knock 😘😘
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                  ​
                  • Likes 2

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                    #1314
                    Good day everybody xx
                    • Likes 1

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                      #1315
                      Originally posted by Ellie View Post

                      Hope they were as nice as us lot, Rosemary 😍😘
                      Yes Ellie they were. They also sent me home with a left over cake and bowl of trifle when they heard that I'm being required to consume 2600 cals/day
                      Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
                      • Likes 1

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                        #1316
                        That's great Rosemary6NT Any potential Bridge players amongst them?

                        Happy eating, hope you don't feel like the proverbial Christmas πŸ¦ƒ 🀭 xx
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                        ​
                        • Likes 2

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                          #1317
                          Originally posted by Ellie View Post
                          That's great Rosemary6NT Any potential Bridge players amongst them?
                          I didn't get around to that question sadly xx
                          Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
                          • Likes 1

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                            #1318
                            Next time Rosemary6NT 🀞
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                            ​
                            • Likes 2

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                              #1319
                              Just back online after a day off for work on the system πŸ“΄πŸ˜³πŸ˜πŸ€”xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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                                #1320
                                matthew55 Greater Manchester sewerage system still functioning?? πŸ˜‰πŸ˜˜πŸ˜˜
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                                ​

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