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    Lol. Virgin broadband πŸ˜‚πŸ˜πŸ˜ŽπŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      🀣🀣🀣🀣😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        Good morning
        I am still full of steak and ale pie from last night.
        It's all funny

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          Was this steak and ale pie or steak pie with pour over ale? 🀣

          Morning everyone. Horrible start here.
          when i can think of something profound i will update this.

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            Morning all.
            Keno steak and ale pie is one of our favourites when we eat out at a pub. You were up early. Did the pie keep you awake? Xx
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

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              Good morning everybody. I miss eating more than anything. Mind over matter or Madness knocks. πŸ’‘πŸ‘€πŸ‘‡πŸ˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                Originally posted by Lynne K View Post
                Morning all.
                Keno steak and ale pie is one of our favourites when we eat out at a pub. You were up early. Did the pie keep you awake? Xx
                Yes it did a bit
                It's all funny

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                  Originally posted by denise View Post
                  Was this steak and ale pie or steak pie with pour over ale? 🀣

                  Morning everyone. Horrible start here.
                  May have been once inside
                  It's all funny

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                    Morning....steak & ale pie....yumπŸ˜‰πŸ‘πŸ»
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                      Yeah I'm all for that. Have to have a favourite pie party πŸ™‚
                      when i can think of something profound i will update this.

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                        denise
                        Hi Denise ..you mentioned you are having a horrible start today? What’s wrong?
                        Best wishes
                        Mary xx

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                          Good day all xx

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                            Hi Mary
                            I dont know sometimes things are easy and some days I struggle. Stephen is very keen to smoke even with his nicotine patches and he will go on and on and keep trying to pursued me to roll him a fag. I get up when he wants to get up. I just do everything but some days I just would like to have my life back just for a while. I know it sounds selfish but it can get to me. I cant reason with him. Hes a bit like a spoilt child. He will have a dementia assessment in January even though I brought it up rather a long time ago. I don't know how to deal with it. It just gets me down.
                            sorry guys πŸ˜˜πŸ€—πŸ₯°
                            when i can think of something profound i will update this.

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                              I'd give my eye teeth to smoke again. What's it going to do? Kill me? πŸ‘οΈπŸ€£πŸ˜πŸ˜xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                                denise supporting someone with a diagnosis of dementia is never easy - you need regular breaks or you'll become unwell. Sorry it's so tough 😘😘
                                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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