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    #121
    Hurray Matthew, 8 hours! xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user    .
    ​

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      #122
      Good morning all

      Richard
      Richard

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        #123
        Morning everyone. Had a good night's sleep 😘
        when i can think of something profound i will update this.

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          #124
          Morning wet and miserable start here. 😞
          when i can think of something profound i will update this.

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            #125
            Good morning campers. πŸ˜πŸ€—πŸ˜πŸ˜˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
            • 👍 1

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              #126
              Hi-dee-hi!
              Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

              Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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                #127
                Hi-de-ho! 😊
                when i can think of something profound i will update this.
                • 👍 1

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                  #128
                  Here I am awake after a horrible panicky feeling. Heart racing. Had hot chocolate earlier which helped but I don't see myself going back to sleep now. 😒
                  when i can think of something profound i will update this.
                  • 👍 1

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                    #129
                    Aw, sorry to read that denise, I hope you are feeling calmer now? xx

                    It is persisting down here, so, not quite 'flaming June'....
                    Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

                    Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png
                    • 👍 1

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                      #130
                      Up and and at em!! πŸ˜€πŸ˜πŸ€—πŸ˜cx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
                      • 👍 1

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                        #131
                        Here we are nearly 10am and no one has joined in. So I'm going to have a full breakfast and a nice cuppa. Though a kipper would be nice with a chunk of buttered bread.

                        πŸ™„
                        when i can think of something profound i will update this.

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                          #132
                          I was up at 4 but crashed on the sofa until 7. I so envy your breakfast. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #133
                            It's my virtual breakfast. No kippers or British bacon and sausages πŸ˜•
                            when i can think of something profound i will update this.

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                              #134
                              Just the thought is enough sadly. πŸ˜’πŸ€—πŸ˜˜πŸ˜xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                                #135
                                denise A virtual breakfast, I love it πŸ˜‚πŸ˜‚πŸ˜‚ I'm a bit late to join you, but I'll definitely have a nice big brunch. 😘
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user                                .
                                ​

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