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    denise
    Forum Member
    denise so sorry you're having such a bad time.

    Please don't ever apologise... being a carer is such a tough job. You are incredible and should feel very proud of yourself. πŸ‘πŸ₯‡πŸ†

    Love and hugs xxπŸ˜˜πŸ€—πŸ€—πŸ€—

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      G'day everyone.

      There isn't a worm left for this Early Bird at this late hour. xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        denise
        Forum Member
        denise Special thoughts go to you, Lady G. Wish that steed could whisk you away for the weekend... 😚😚
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          Went to sleep with feet raised to help with swollen ankles so was up four times in the night for the toilet.
          Good morning all.
          It's all funny

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            Good morning my dearest friends. Whatever stage you find yourself in we are always here for you. πŸ˜πŸ€—πŸ˜πŸ˜˜xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              Morning early birds and late birds too πŸ˜‰
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                Good morning everyone I’ve actually made it here before midday πŸ˜€!

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                  I managed to catch a woodlouse today 😏

                  It's a beautiful day here. Happy Saturday. 😘😘
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    Originally posted by keno View Post
                    was up four times in the night for the toilet.
                    I know the loo is very close to the bed, Ken but I hope you use a pee bottle rather than get out of bed? 😘

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      Hi everyone I know I'm late but I've been sunbathing. Just to make you all jealous. Thanks for your lovely thoughts they are most welcome.
                      😎πŸ₯°πŸ€—πŸ˜˜
                      Oh biobidet fitted. Interesting! if you haven't got one get one 😘
                      when i can think of something profound i will update this.

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                        Originally posted by Ellie View Post
                        I know the loo is very close to the bed, Ken but I hope you use a pee bottle rather than get out of bed? 😘
                        No, I get out of bed
                        It's all funny

                        Comment


                          Lap it up while you can. πŸ˜‰πŸ‘πŸ€—πŸ˜Žxx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            Originally posted by keno View Post
                            No, I get out of bed
                            Hmmm... If you're safe enough to do that and it's what you want to do, good for you πŸ‘πŸ‘

                            What about having a 'just in case' bottle by the bed for a night when it's -5 outside, or you just don't feel up to getting out of bed the 3rd or 4th time? 😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              Overnight peeing is why I have a catheter. 😱😁😎😍xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                                Good day all xx ☺️

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