Early Bird Club

[Rosemary6NT]

The operation is a breeze. They say sedation but I can't remember a thing after lying down. You will be fine. 👍😁😗😍xx

My MND specialist nurse has warned me they are now doing lighter sedation so the patient is more aware

[LindaB]

Morning all. Off to hospital today to have PEG fitted tomorrow. Apprehensive as I'm a wimp and over the last few days have lost the ability to transfer independently. I wonder how things will work in hospital

Good luck with hospital and your procedure....hope all goes well. You're definitely not a wimp...far from it. Sorry to hear transfers have become too difficult...there will be staff in hospital to help you with that. Is anyone going with you (assuming it's permitted)
Sending love and light🙏

[Rosemary6NT]

Good luck with hospital and your procedure....hope all goes well. You're definitely not a wimp...far from it. Sorry to hear transfers have become too difficult...there will be staff in hospital to help you with that. Is anyone going with you (assuming it's permitted)
Sending love and light🙏

Thanks LindaB my partner will be taking me. Just phoned to check bed available and they are still waiting for a discharge , they will let me know at 4pm. All dressed up and nowhere to go. It's nearly a 2hour journey

[Betty May]

Morning all. Off to hospital today to have PEG fitted tomorrow. Apprehensive as I'm a wimp and over the last few days have lost the ability to transfer independently. I wonder how things will work in hospital

My husband had his RIG in May and as his breathing muscles were weak they did it under light sedation - in fact beforehand they made quite a big deal about his breathing and he was dreading it but it actually went really well. The anaesthetist came to see him before the procedure and all the staff were very kind and reassuring and what to us was a huge deal was a simple procedure to them. They were pro-active afterwards in getting him sitting up, drinking etc and we were trained on the care of the feeding tube by the dietician and an Abbot nurse who came to the ward. He got home two days after the procedure.

He also couldn't transfer independently (he could stand with assistance and do a bed/chair-to chair transfer but not walk) so two nurses helped him in and out of bed and onto a commode etc. Though so busy they were all kind and helpful. My husband still had his voice and the use of his hands so of course that helped a lot.

Best wishes for tomorrow - and don't call yourself a wimp! - it's a big deal getting a feeding tube.

[Rosemary6NT]

Thanks Betty May . That's reassuring. My breathing is also a bit compromised so they'll be doing it with me semi-upright (they have a sloping bed). Not looking forward to the commode bit as they will need a hoist and I've never had anyone but my partner to "attend" to me before . Has to happen some time I guess

[matthew55]

Chin up girl. You can do this. 👍😁😘😍xx

[Ellie]

Not looking forward to the commode bit as they will need a hoist and I've never had anyone but my partner to "attend" to me before

I used to shut my eyes tightly like a 3 year old, pretend it wasn't happening 🙄🤣🤣 and go to my 'happy place'. Now it's so normal that I don't flinch at the thought of male carers in the hospice bring me to the loo or shower me...

Hope PEG procedure goes to plan and, you're definitely *not* a wimp... xx

[Gordan1111]

Hope went ok @Rosemary6NT xx me back at home again after getting shower-room done

[matthew55]

Morning all. Up at ridiculous hour to make sure I get first carer. Last two days he has turned up I've been asleep. 😴🤔😁😍

[keno]

I slept late too and didn't wake till seven.
good morning all.

[LindaB]

Morning campers🌞🌞🌞

[denise]

Morning everyone. Blowing a gale out there. I can usually see the Edison lighthouse. If I get to see it today it means I've been washed out to sea. 😳

[Ellie]

Blowing a gale here too, so much so that we lost power for a few hours this morning.

I was dressed and warm by the fire when power was restored, so I couldn't be bothered undressing for a shower 😏 - I don't think I stink (much) 😍😍

I had a lovely sleep, gales or no gales. 😘

[LindaB]

Weather getting worse in my neck of the woods. I'm going back to bed for an audio book listen and nap. Stay cosy everyone.
📚😴

[Doug Carpenter]

Are your Nippy batteries ok Ellie?

Hugs

Doug